Women and Disability: Organizations and Projects

This is a brief listing of organizations and projects focused primarily on women and girls with disabilities. These organizations and projects focus on all kind of topics, but they are listed alphabetically for ease.

ABLE OWNERS – Women with Disabilities Entrepreneurship Project (WDEP)
The WOMENTOR Group, LLC and the U.S. Department of Labor,
Women’s Bureau

http://www.womentor.com/
http://www.dol.gov/odep/
http://www.dol.gov/wb/

Launched in 2002, The Women with Disabilities Entrepreneurship Project has been working with contractors in four regions to recruit, screen, and refer women with disabilities to organizations that provide entrepreneurial training and supplemental life skills training. This training includes basic concepts about business and how to complete a business feasibility plan; concept development; marketing; price and profitability; and resource development. These women in the program also benefit from one-on-one consultations and assessments, networking activities, and industry-specific mentoring from regional partners.

The Office of Disability Employment Policy (ODEP) has now partnered with the WB to support and expand the purpose and goals of the project through 2005.

About-Face
P.O. Box 77665
San Francisco, CA 94107
(415) 436-0212
Email: info@about-face.org
http://www.about-face.org/

A San Francisco-based non-profit group, About-Face combats negative and distorted images of women in the media and promotes positive self-esteem in girls and women of all ages, sizes, races and backgrounds through a spirited approach to media education, outreach, and activism.

Abused Deaf Women’s Advocacy Services (ADWAS)
2627 Eastlake Ave. E.
Seattle, WA 98102-3213
Phone: 206.726.0093
Relay: 800.833.6384
Fax:206.726.0017
Email: ADWAS@adwas.org
WWW: http://www.adwas.org

“ADWAS is committed to providing services to Deaf and Deaf-Blind victims of sexual assault and/or domestic violence. The mission of ADWAS is a belief that violence is a learned behavior and it should not be tolerated.”

Berkeley Planning Associates
440 Grand Ave., Suite 500
Oakland, CA 94610
telephone: 510-465-7884
fax: 510-465-7885
TDD: 510-465-4493
Email: info@bpacal.com
http://www.berkeleypolicyassociates.com/text/work_focus.html

As a woman-owned company, BPA is committed to conducting research and providing assistance in areas that directly affect women and their families. Most of our research has a focus on issues of importance to women, including women’s health issues, welfare reform, income security, child support, domestic violence, child care, teen parenting, non-traditional employment, and microenterprise programs for women. We are especially cognizant of the importance of examining the difficult choices low-income women must make as they divide their time and attention between their own moves toward self-sufficiency and the needs and demands of their families. Our research on welfare reform, for example, has highlighted the challenges faced by low-income women who often face multiple barriers as they seek to negotiate social service systems, care for their children, and maintain employment all at the same time. BPA also has developed special expertise in research concerning women with disabilities, specifically in the areas of caregiver abuse, access to reproductive health services and other health care services for women with disabilities, and the inclusion of girls with disabilities in youth programs.
Beyondmedia Education
7013 N. Glenwood Ave.
Chicago, IL 60626
773-973-2280
FAX: 773-973-3367
Email: beyond@beyondmedia.org
http://www.beyondmedia.org/

“Beyondmedia Education envisions a compassionate and just society where universal access to media tools and information equip women and youth to document and communicate their stories, serve as educators and role models for others, influence public policy, and generate social transformation. Beyondmedia Education’s mission is to collaborate with under-served and under-represented women, youth and communities to tell their stories, connect their stories to the world around us, and organize for social justice through the creation and distribution of alternative media and arts. Beyondmedia Education works with communities most in need of media education and services because of economic and/or social exclusion. Since 1996, we have partnered with over 90 community-based organizations and schools to produce media arts on subjects ranging from girls’ activism to women’s incarceration.”

Breast Health Access for Women with Disabilties (BHAWD)
c/o Alta Bates Summit Medical Center
Herrick Campus
Rehabilitation Services
2001 Dwight Way, 2nd Floor
Berkeley, CA 94704
Voice – (510) 204-4866
TDD – (510) 204-4574
FAX – (510) 204-5892
MaikiF@sutterhealth.org
http://www.bhawd.org/

BHAWD is a community partnership of women with disabilities, breast cancer survivors, medical professionals and grassroots disability rights organizations.

Breast Health for Women with Disabilities
Wyoming Institute for Disabilities
Department 4298
1000 E. University Ave.
Laramie, WY 82071
Phone: 307-766-2761
TTY: 307-766-2720
E-mail: wind.uw@uwyo.edu
http://wind.uwyo.edu/breasthealth/default.htm

The Breast Health for Women with Disabilities project was made possible by a grant from the Wyoming Affiliate of the Susan G. Komen Breast Cancer Foundation. Developed by the Wyoming Institute for Disabilities (WIND), the project was designed to make information on breast health for women with disabilities accessible to health care providers, women with disabilities, their families and loved ones. The project consists of the development of an annotated bibliography, the procurement of library materials on this topic, and the creation of a handbook (see pg xx of this document) which provides an introduction to basic breast health issues.
Center for Research on Women with Disabilities (CROWD)
Department of Physical Medicine and Rehabilitation
Baylor College of Medicine
3440 Richmond Avenue, Suite B
Houston, Texas 77046
Phone: 713-960-0505
Toll Free: 800-44-CROWD
Fax: 713-961-3555
Email: crowd@bcm.tmc.edu
http://www.bcm.edu/crowd/

The Center for Research on Women with Disabilities (CROWD) is a research center that focuses on issues related to health, aging, civil rights, abuse, and independent living. CROWD’s purpose is to promote, develop, and disseminate information to expand the life choices of women with disabilities so that they may fully participate in community life. More specifically, researchers develop and evaluate models for interventions to address specific problems effecting women with disabilities.

Deaf Women United, Inc. (DWU)
PO Box 14624
Rochester, NY 14624
Email: dwuboard@dwu.org
http://www.dwu.org/

“DWU believes in having a strong relationship with Deaf women to build bridges by spreading unique knowledge and information involving deaf women issues.”

DisAbled Women’s Network Ontario
Box 1138
North Bay, ON P1B 8K4
CANADA
E-mail: dawnontario@sympatico.ca
http://dawn.thot.net/

DAWN Ontario is a progressive, volunteer-driven, feminist organization promoting social justice, human rights & the advancement of equality rights through education, research, advocacy, coalition-building, resource development, & information technology.

Domestic Violence Initiative for Women with Disabilities
P.O. Box 300535
Denver, CO 80203
303-839-5510 (Voice/TDD)
Fax: 303-839-1181
E-mail: dvidenver@aol.com

The Domestic Violence Initiative provides comprehensive domestic violence advocacy, education, empowerment and accessibility for women with disabilities.

Educate to Eliminate…Violence Against Women with Disabilities
Center for Independent Living Options, Inc.
632 Vine Street, Suite 305
Cincinnati, OH 45202
Phone: (513) 241-2600
http://www.educatetoeliminate.org/

Educate to Eliminate seeks to end violence and abuse against women with disabilities through education, training, and outreach. This project wants to ensure that abused women with disabilities receive the help they need and that the community is able to provide that help. Presentations, trainings, and written materials are available and may be tailored to meet individual company or agency needs.

The Ethel Louise Armstrong (ELA) Foundation, Inc.
2460 North Lake Avenue, PMB #128
Altadena, CA 91001
E-mail: info@ela.org
http://www.ela.org/

The vision of the Ethel Louise Armstrong Foundation, Inc. (ELA) is to change the face of disability on the planet. In order to accomplish this vision, ELA’s mission is to promote, through grants and scholarships, the inclusion of people with disabilities in the areas of arts, advocacy and education. The Ethel Louise Armstrong Foundation, Inc. (ELA) was founded by Margaret Staton in 1994 to “Change the Face of Disability on the Planet.” Named after her maternal grandmother, ELA seeks especially to support the work of organizations that are led by or support the work of women with disabilities, encouraging distinctive projects that make a substantial difference. The ELA Foundation scholarship is for any woman with a physical disability who is enrolled in graduate program–a Masters degree or above–at an accredited college or university in the United States.

Equity for Young Women with Disabilities
Montana Center on Disabilities
MSU-Billings
1500 University Drive
Billings, MT 59101-0298
Phone (406) 657-2312 (Voice/TTY)
Toll Free 1-888-866-3822
Fax (406) 657-2313
http://www.msubillings.edu/equityoutreach/

This project is a model to increase equity in the education of young women with disabilities, especially in regard to their successful transition to post secondary education or employment. The model includes strategies in the areas shown by research to have a positive impact on employment and wage outcomes, which are career development, self-esteem, and the family friend network.

The Health Resource Center for Women with Disabilities
Rehabilitation Institute of Chicago
345 E. Superior Street
Chicago, IL 60611
(312) 238-1051
http://www.ric.org/community/womendc.php

Health Resource Center for Women with Disabilities at RIC offers a multifaceted approach to meeting the needs of women with disabilities. Founded in 1991 as a collaborative effort by women with disabilities and the hospital staff, the Center has developed an array of programs and services tailored to the life changes and ongoing issues for women.

Healthcare Access for Women and Girls with Disabilities
Contact: Rachel Elizabeth Brill, Esq.
Pfizer/Geodon Equal Justice Works Fellow
Disability Rights Education and Defense Fund, Inc. (DREDF)
2212 Sixth Street
Berkeley, CA 94710
510-644-2555 (V/TTY)
510-841-8645 Fax
email: rbrill@dredf.org
http://www.dredf.org/

Announced February 2005, The Healthcare Access for Women and Girls with Disabilities project is one facet of DREDF’s broader healthcare access work, and is staffed by Rachel Brill, Esq. Ms. Brill is an Equal Justice Works Fellow whose work is funded by a generous grant from Pfizer, Inc.

DREDF will be working with a variety of stakeholders in the fields of disability civil rights and healthcare to create a Healthcare Equity Blueprint, and seeks the valuable input that can only come from individual women and girls with disabilities.

The Initiative for Women with Disabilities
Judith Goldberg, MA, NPC, Administrative Director
Inna Rozentsvit, MD, Medical Director
301 East 17th Street, Suite 551
New York, NY 10003
(212) 598-6429
Email: judith.goldberg@med.nyu.edu

The Initiative for Women with Disabilities Elly and Steve Hammerman Health & Wellness Center (IWD) at the Hospital for Joint Diseases is a multi-disciplinary center committed to providing respectful, high quality medical and gynecological services in a fully accessible environment for women with physical disabilities and chronic conditions.

National Center for Gender Issues and AD/HD
3268 Arcadia Pl NW
Washington, DC 20015
Phone: 888-238-8588
Fax: 202-966-1561
email: contact@ncgiadd.org
http://www.ncgiadd.org/resources/

ADHD is a neurological disorder affecting millions of individuals, limiting their potential, affecting their families, and interfering with many aspects of their daily lives. For girls and women, ADHD is often a hidden disorder, ignored or misdiagnosed by the educational and medical communities causing these girls and women to suffer in silence.

Improved knowledge and a better understanding of girls and women with ADHD have the potential to improve many lives and relieve countless women of the shame with which they have grown up. To date, the medical community, as well as the general population, remains ignorant of the unique impact of ADHD on females. Current diagnostic criteria that continue to emphasize traits common to boys leave the majority of girls and women with ADHD to remain undiagnosed and misunderstood.

To address this problem, the National Center for Gender Issues and ADHD has been founded to promote awareness, advocacy, and research on AD/HD in women and girls.

National Women’s Studies Association, Disability Caucus
Margaret Howe – lgvisions@aol.com
Virginia Bemis – VBemis@Ashland.edu
http://www.nwsa.org/disability.html

NWSA supports and promotes feminist/womanist teaching, learning, research, and professional and community service at the pre-K through post-secondary levels and serves as a locus of information about the inter-disciplinary field of women’s studies for those outside the profession. There are several NWSA caucuses whose major goals involve representation of point(s) of view currently recognized by NWSA, with one focusing on disability.

Partners for Accessible Healthcare for Women (PAHW)
Kaufman Medical Building
Suite 201, 3471 Fifth Avenue
Pittsburgh, PA 15213-3221
Telephone: (412) 648-6848
Fax: (412) 692-4410
E-mail: dmr-webmaster@disabilitymedicalresources.org
http://disabilitymedicalresources.org/

“Nearly 20 percent of women between the ages of 25 and 64 have some sort of disability. This staggering statistic has great impact on the quality of healthcare women receive. Our goal is to help women with disabilities lead healthy and inclusive lives. We hope to make women’s healthcare more accessible and introduce related organizations.”

The Personal SPACE Program: A Gender Violence Prevention Program for Women
The Arc of Maryland
49 Old Solomons Island Road, Suite 205
Annapolis, MD 21401
(410) 571-9320
(410) 974-6139
Fax: (410) 974-6021
E-mail: info@thearcmd.org
http://www.thearcmd.org/Programs/GenderViolence/intro.htm

In October 1997, The Arc of Maryland received a Projects of National Significance Grant from the Administration on Developmental Disabilities of the U.S. Department of Health and Human Services to develop a gender violence prevention curriculum for women with developmental disabilities. The curriculum—The Personal SPACE Program—was developed by women with developmental disabilities, family members, and professionals in the fields of developmental disabilities, sex education, counseling, violence prevention, training, and evaluation. The curriculum is now available by calling 410-571-9320 x21—or sending an email request to info@thearcmd.org.

Project I Care: Disabled Women and Personal Assistance Against Violence
DPI Italia Onlus
Via Dei bizantini, 97 – 88046
Lamezia Terme (CZ)
Tel. +39.0968.463499,
Fax + 39.0968.463568,
E-mail: icare@dpitalia.org & dpitalia@dpitalia.org
http://www.dpitalia.org

This is a collaborative European project funded by Programme Daphne where a network of organizations analyzed the violence women with disabilities are subject to due to their disability, especially in relationship to the personal assistance they depend on to carry out everyday activities. This project involved two focus groups from each participating country, one of women with disabilities and one of personal assistants. The project is ending and will be producing an information kit and manifesto, creating support networks between participants and those in the European disability community, and new methodology on preventing violence in assistance relationships. This project will then be concluded with a conference in Italy on April 9-10, 2005. Go to http://www.dpi.org/en/events/documents/WOMEN
Programmedraft.doc
 for a program from this conference. For more information, contact DPI Italia Onus at the email addresses above.

Women and Girls with Disabilities Initiative
Women & Philanthropy – Leadership Caucuses
1629 K Street, NW Suite 402
Washington, DC 20006
202-887-9660
http://www.womenphil.org/

In partnership with the Disability Funders Network, the initiative, currently in formation, will focus on women and girls with disabilities. The Initiative will be designed to educate foundation and corporate funders about issues of importance to women and girls with disabilities and to facilitate communication and collaboration between non-profits, serving women and girls with disabilities, and organized philanthropy.

Check their web site (click on “Connect & Act”) in the future for more information.

WAAT – Women And Adaptive Technology
4 Escasoni Place
St. John’s, NL A1A 3R6
CANADA
Fax: (709) 722-0147
TTY: (709) 722-7998
http://www.ilrc.nf.ca/Waat/waat_home.htm

This is a one-year project and study utilizing participatory action research officially called “Women with Disabilities and Adaptive Technology in the Workplace: Participatory Action Research and Applied Principles of Independent Living.” The project has recruited 12 women from the greater St. John’s area (in Canada) who self-identify as having disabilities. The project will involve further developing the current website, creation of a poster display for use in presenting project activities and a final report to distribute to the disability community.

Women with Disabilities Center
Rehabilitation Institute of Chicago (RIC)
345 E. Superior Street
Chicago, Illinois 60611
(312) 238-1051
http://www.ric.org/community/womendc.php

The Health Resource Center for Women with Disabilities provides accessible, comprehensive health services for women with disabilities throughout the Midwest and beyond. Through a creative partnership between the community of women with disabilities and rehabilitation service providers, they work to enhance the availability, accessibility and excellence of medical and psychosocial support for all women with disabilities nationwide. They are committed to the development and implementation of advocacy programs, clinical services, research, and resource networks that empower women with disabilities to practice self-determination in achieving emotional and physical well-being. They are committed through the education of professionals to enhancing societal awareness of complex health and cultural issues facing women with disabilities.