Planning and Developing Supports
TITLE: Listen lady, this is my life
AUTHOR: Amado, A., & Lyon, P.
PUBLICATION INFORMATION: 1990
Human Services Research and Development Center
1195 Juno
St. Paul, MN 55116
(612) 696-0012
This is a booklet of stories about personal futures planning as it was implemented with agencies in Minnesota with strategies for systems change.
TITLE: Choice through knowledge, Knowledge = power
AUTHOR: Cotton, P., & Sowers, J.
PUBLICATION INFORMATION: 1995
Patty Cotton
Jo-Ann Sowers
(603) 228-2084
This manual was developed to provide an overview of services provided through an organization called Opus, Inc. in New Hampshire. The organization was formed in 1995 to assist individuals with disabilities and their families to determine the types of support they need and to get them either through formal or informal resources.
The emphasis of their efforts is on assisting people to understand and create alternative means of getting the supports they need such as hiring a service broker to find services through natural networks, professional business arenas, community services, and human service systems. Prior to choosing service providers, the agency assists individuals to define what they consider quality services and to conduct interviews with service providers. Once the providers are chosen, Opus, Inc. assists individuals and their families to secure the necessary funding which sometimes involves negotiating with the state. Finally, the agency assists people to evaluate the effectiveness of their supports over time.
Services through Opus, Inc. are paid for by the individual. Typically, funding agencies in New Hampshire allocate a sum of money to the individual to purchase facilitation and support for service planning.
TITLE: Building community one person at a time: One candle power
AUTHOR: Ducharme, G., Beeman, P., DeMarasse, R., & Ludlum, C.
PUBLICATION INFORMATION: 1994
In V. J. Bradley, J. W. Ashbaugh, & B. C. Blaney (Eds.), Creating individual
supports for people with developmental disabilities: A mandate for change
at many levels (pp. 347-360). Baltimore: Paul H. Brookes Publishing Co.
This chapter describes a project funded by the Connecticut Developmental Disability Council to implement the concept of circles of support with five individuals. Circles of support, as described, here consist of a six-part process designed to improve the lives of individuals with disabilities. The process includes: 1) building on capacities of people and communities; 2) clarifying the vision and goals of the person with the disability; 3) building circles of support; 4) building bridges to community life; 5) starting small; and 6) changing systems. In this chapter, DeMarasse (who lived in an institution) and Ludlum (who lived with her family) tell how this process has helped them to move to homes of their own and gain membership in their communities.
TITLE: Personal relationships and social networks: Facilitating the participation of individuals with disabilities
AUTHOR: Lutfiyya, Z. M.
PUBLICATION INFORMATION: 1991
Center on Human Policy
Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
1-800-894-0826
This information packet includes an overview article, three articles which describe the experiences of people with disabilities who have nondisabled friends and are part of a network of people, and an annotated bibliography.
TITLE: Person-centered planning: Finding directions for change using personal futures planning
AUTHOR: Mount, B.
PUBLICATION INFORMATION: 1992
Graphic Futures, Inc.
25 West 81st Street, 16-B
New York, NY 10024
(212) 362-9492
This booklet presents the values and philosophy of person-centered planning in comparison with traditional practices. It includes a description of the planning process and the implications for long-term change for individuals and organizations.
TITLE: It's never too early, it's never too late: A booklet about personal futures planning
AUTHOR: Mount, B., & Zwernick, K.
PUBLICATION INFORMATION: 1988
Metropolitan Council
Mears Park Centre
230 East Fifth Street
St. Paul, MN 55101
This booklet provides a good overview of personal futures planning. It begins with a comparison of this approach with traditional planning methods. Then, through personal examples, the booklet describes the components of the actual planning process. The last section discusses the role of personal futures planning in relation to Individual Habilitation Plans and in promoting systems change.
TITLE: A guide to life-style planning: Using The Activities Catalog to integrate services and natural supports
AUTHOR: O'Brien, J.
PUBLICATION INFORMATION: 1987
In B. Wilcox & G. T. Bellamy, A comprehensive guide to The activities
catalog: An alternative curriculum for youth and adults with severe
disabilities. Baltimore: Paul H. Brookes Publishing Co.
O'Brien presents life-style planning as a process that guides family members, friends, and service providers through three essential planning activities: 1) describing a desirable future with the person with a disability; 2) developing a schedule of activities and supports that will organize available resources to move toward that future; and 3) accepting responsibility for using available opportunities and dealing with the lack of needed activities and supports. This approach is based in the understanding that there are five basic accomplishments that should guide services for people with severe disabilities: community presence, community participation, choice, respect, and competence.
TITLE: Finding a way toward everyday lives: The contribution of person centered planning
AUTHOR: O'Brien, J., & Lovett, H.
PUBLICATION INFORMATION: 1992
Center on Human Policy
Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
1-800-894-0826
This monograph describes the foundation of person-centered planning, its limitations, the controversies among practitioners, and fears about its debasement. It also includes a brief description of different approaches including: Individual Service Design, Personal Futures Planning, MAPS, and Essential Lifestyle Planning.
TITLE: Telling new stories: The search for capacity among people with severe handicaps
AUTHOR: O'Brien, J., & Mount, B.
PUBLICATION INFORMATION: 1989
Center on Human Policy
Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
1-800-894-0826
This article tells the story of a man from two perspectives. It contrasts the story told by traditional service plans with the effort to understand his life from a personal and capacity based perspective. The two stories differ in the way they were constructed, in their purpose, in their consequence, and in the assumption they shape about human development and human service organization.
TITLE: Multiculturalism and disability: A collection of resources
AUTHOR: O'Connor, S.
PUBLICATION INFORMATION: 1993
Center on Human Policy
Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
1-800-894-0826
This information packet includes an overview article which offers a discussion on how disability should be included in the multicultural dialogue and an annotated bibliography of readings, organizations and other resources related to multiculturalism and disability. Topics include: attitudes, education, and system issues.
TITLE: Supporting people with severe reputations in the community
AUTHOR: Smull, M., & Harrison, S.
PUBLICATION INFORMATION: 1992
National Association of State Directors of
Developmental Disabilities Services (NADDDS)
113 Oronoco Street
Alexandria, VA 22314
(703) 683-4202
This handbook describes, using many practical examples, how people receive "severe reputations," how planning can be implemented with an individual for community living, how supports to implement the plan can be recruited, and how the frequent perversions of supported living for people with more severe disabilities can be avoided.
TITLE: Supports for community living: A case study
AUTHOR: Traustadottir, R.
PUBLICATION INFORMATION: 1991
Center on Human Policy
Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
1-800-894-0826
This report is based on a qualitative study which examines in detail the supports provided to one individual with severe disabilities and the role of this support in enabling him to become part of community life.
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