by
Rannveig Traustadottir
Center on Human Policy
July 1990
Disability studies have traditionally used a gender blind approach to examine the lives of people with disabilities and have neglected to explore the influence of gender in the lives of men and women with disabilities. The field of disability has not yet recognized the combined discrimination of gender and disability experienced by women who have disabilities, and policies and practices in the field have not been designed to meet the specific needs of women with disabilities (Asch & Fine, 1988; Kutza, 1985; Mudrick, 1988).
The disability rights movement has also ignored issues of importance to women with disabilities and many feminists with disabilities have complained about its male domination and male orientation (Blackwell-Stratton, et al., 1988; Toews, 1985). Deegan and Brooks (1985: 1) have criticized the disability rights movement for directing most of its attention to male concerns while women's issues, such as child-bearing problems, have received little attention. They point out that, "Like many other social change movements, the disability movement has often directed its energies toward primarily male experiences." This makes many feminists with disabilities uneasy members of the disability rights movements, for example, Israel and McPherson (1983: 20), who describe how "Disabled feminists...feel uncomfortable in the disability movement because it is often male dominated and at times blatantly sexist."
Women with disabilities have described their exclusion from the women's movements because meetings and conferences are typically held in inaccessible places (Israel, 1985). In addition, materials are usually available in print only, not in Braille or on tape, and sign language interpretation is rarely offered. Mary Jane Owen (1986; 1988), a scholar who became blind in adulthood, has written sarcastic accounts of her frustrations when the feminist scholarship she was used to reading was no longer available to her because it did not exist on tape or in Braille.
Not only has the women's movement been criticized for being physically inaccessible to women with disabilities, it has also been criticized for ignoring the issues facing women with disabilities in general (Blackwell-Stratton, et al., 1988; Davis, 1987; Finger, 1985) and women with mental retardation in particular Boyle, et al., 1988; Sank & Lafleche, 1981). Some feminists with disabilities have found the lesbian movement to be more accepting than the women's movement in general. For example, Israel and McPherson (1983: 21) claim that within the feminist movement, "Nondisabled lesbian feminists have been more sensitive than heterosexual feminists...in responding to the needs of disabled women at their conferences and events."
Women with disabilities are typically seen as helpless, childlike, dependent, needy, victimized, and passive. They therefore reinforce traditional stereotypes of women. Asch and Fine (1988: 4) suggest this may be one of the reasons why women with disabilities have been excluded from the women's movement. They suggest, "...non-disabled feminists have severed them from the sisterhood in an effort to advance more powerful, competent, and appealing female icons."
The overwhelming majority of the writings on women with disabilities have been published within the past decade. The year 1981 was a turning point. That year a number of publications addressed the lives of women with disabilities, among them a British anthology edited by Jo Campling (1981) containing the writings of 23 women with disabilities describing their lives and experiences of being female and having a disability. The same year, Duffy (1981) published a book about the sexuality of women with disabilities that is still hailed as one of the best writings on the subject. In May of 1981 the feminist journal Off Our Backs devoted a whole issue to women with disabilities and later the same year the Journal of Sociology and Social Welfare published an issue devoted to the theme "Women and disability: The double handicap." This issue included an article by Fine and Asch (1981), "Disabled women: Sexism without the pedestal." Their conceptualization of women with disabilities as "roleless" has had a significant influence and gained much note in subsequent literature.
In 1983 another scholarly journal, the Journal of Visual Impairments and Blindness, devoted an entire issue to women with disabilities. The same year a book based on interviews with 45 women with disabilities was published in Canada. The author, Gwyneth Matthews (1983), has a physical disability and the book is a mixture of her autobiography and the interviews. In 1984 the President's Committee on Employment of the Handicapped published a report (Bowe, 1984) containing statistical information about women with disabilities that clearly demonstrated the disadvantaged status of women with disabilities in terms of education, employment, and income, compared to both their male counterparts and non-disabled women. An edited volume addressing the major issues for women in mental health was published in 1984 (Walker, 1984) and two feminist books focusing on health issues included women with disabilities. The new our bodies, ourselves Boston Women's Health Book Collective, 1984) was published in a new edition which incorporated a disability perspective into most chapters and an edited volume on reproductive technologies, Test tube women: What future for motherhood? (Arditti, Klein, & Minden, 1984), which included chapters by women with disabilities where they discuss, among other things, the moral dilemma between disability rights and reproductive rights.
In 1985 the first major collection of scholarly writings about women with disabilities was published (Deegan & Brooks, 1985). The eleven chapters in this volume focus on the double minority status of women with disabilities, the lack of information about their lives and experiences, and the need to change the conditions that perpetuate the structural inequality women with disabilities experience. The book's conceptualization around women with disabilities as a multiple minority group has had significant influence on other people's thinking and writing. The year 1985 also saw a collection of essays written by Susan Hannaford (1985), a feminist and disability rights activist, and a collection of essays, poetry, and first-person accounts by women with disabilities (Browne, Connors, & Stern, 1985). In 1987, Saxton and Howe edited an anthology of literature by and about women with disabilities with more literary ambition than previous anthologies, resulting in a collection of writings of high literary quality.
In 1988, a second edited volume of scholarly writings about women with disabilities was published. The authors of this volume, Fine and Asch (1988), have been among the leading scholars in this area and their volume is the most comprehensive edited collection of scholarly writings about women with disabilities to date.
Disabled, Female, and Proud!, a book providing positive role models for women and girls with disabilities was published in 1988. The book is edited by Rousso (1988) and contains stories of ten contemporary women with disabilities who have "made it" and can serve as role models for other women with disabilities. The first comprehensive book on sexual abuse of women and children with mental retardation was published in Canada in 1988 (Senn, 1988) documenting the extreme vulnerability of this group and high incidents of abuse. Also published in 1988 was, Why can't Sharon Kowalski come home? (Thompson & Andrezejewski, 1988). The book tells the story of a lesbian couple, one of whom becomes disabled in a car accident, and has directed attention to the vulnerability of lesbian women with disabilities because of the combined oppression of handicapism, sexism, and homophobia.
The largest part of the literature about women with disabilities has been written by themselves and a substantial part consists of their personal accounts of being female and having a disability. Some speak out in anger and bitterness of the isolation, despair, poverty, and powerlessness, while others celebrate achievements, strength, happiness, and fulfillment, despite their struggles.
Although research in this area is relatively new, the writings of the past decade have provided research-based information about the social, economic, and psychological circumstances of women with disabilities along with theoretical analysis providing a framework to understand and interpret their lives and experiences. Much of the scholarly writing has been devoted to identifying the barriers women with disabilities face in today's society and has documented that they fare less well than both men with disabilities and non-disabled women in education and employment; in receiving economic security and social support; and in their access to sexuality and intimacy.
The major factor unifying the scholarly writings is the conceptualization of women with disabilities as a group with a multiple minority status. This scholarship typically combines disability studies and feminist studies to explore the combined discrimination based on disability and gender. Some authors have characterized women with disabilities as "roleless" because of the limited social roles available for them and the absence of institutional means to achieve valued adult roles. Women with disabilities are not seen as fit to fill the traditional roles of a mother, wife, homemaker, nurturer, or lover and economically productive roles are not seen as appropriate for them either.
The existing literature on women with disabilities is somewhat limited in scope because, with a few but significant exceptions, it has been overly focused on women who have physical disabilities. Women with developmental disabilities and mental health problems have been underrepresented in the literature. In addition, despite an attempt to incorporate diversity in terms of race, ethnicity, and class, women of color still remain underrepresented. Although somewhat limited, this new and exciting body of literature provides the basis for further advances, more refined theoretical analysis, and a better understanding of the lives of women with disabilities.
The remaining sections will examine three major areas of life and how women with disabilities fare within these areas, compared to women without disabilities and men with disabilities. These three areas are the traditional female sphere of reproduction and nurturing; education; and employment.
Non-disabled women often feel trapped in unfulfilling or abusive relationships because they cannot imagine how they will survive economically on their own. Hannaford (1989) suggests that this may be even more true of women with disabilities who often may have to put up with abusive or exploitative relationships because of their limited social and economical means or because the only other alternative may be a life in an institution. In addition, Asch and Fine (1988) report that women with disabilities may return to abusive relationships because it may be the only intimate relationship they ever had and they may judge it better to have a bad relationship than no relationship at all.
Although non-disabled lesbians have been reported to be more accepting of women with disabilities within their meetings and conferences (Israel & McPherson, 1983), the literature seems to indicate that lesbians with disabilities have the same difficulties as heterosexual women with disabilities in establishing intimate, long-lasting relationships with a partner (Asch & Fine, 1988).
Many women may not see marriage as a preferred status, nor may they regard the most traditional female roles as desirable. At the same time, non-disabled women are more likely than women with disabilities to have the possibilities to choose between traditional and nontraditional life-styles. Women with disabilities rarely have the same options and their access to even the most traditional female roles is very restricted.
There are only scattered accounts of motherhood as experienced by women with disabilities. These accounts have mostly been written by women who have physical disabilities (Anderson, 1985; Hyler, 1985; LeMaistre, 1985; Roth, 1981), or based on interviews with this group of mothers (Shaul, Dowling, & Laden, 1985). Mothers with mental retardation have not been represented in this literature, and as a result these mothers are even more invisible than other mothers with disabilities and very little is known about their lives and struggles. The limited information available has been written by professionals who tend to discuss mothers with mental retardation in terms of the problems they pose for the social welfare services that encounter them (Budd & Greenspan, 1985; Shilling, et al., 1982; Whitman & Accardo, 1990). Few, if any, resources are available that presents their own point of view and how they experience motherhood. One of the few resources available about this group of mothers found that 25% of them had had their children removed from their care (Whitman & Accardo, 1990).
Although society's fears that women with disabilities will produce defective children are for the most part groundless, because the vast majority of disabilities are not hereditary, these fears have resulted in severe discrimination against women with disabilities in general and women with mental retardation in particular. Around the turn of the century what was referred to as "feeble-mindedness" was considered a major threat to society. As reflected in the following quotation from 1908, it was generally believed that feeble-mindedness was hereditary: "No feeble-minded mother will ever have a child absolutely normal in every respect" (Johnson, as quoted in Wolfensberger, 1975: 38). More important, these women were thought to lack moral restraints concerning sexual activities and it was believed that as a consequence they would produce a large number of illegitimate and deficient children (Simmons, 1982). The preventative measures taken against this threat included large scale forced sterilization (Scheerenberger, 1987) and institutions for "feeble minded women of child-bearing age" were established, where women with mental retardation were segregated from society as well as from men with mental retardation. In 1960, 26 states still had sterilization laws and as late as 1980, 33 states still had laws that prohibited people with mental retardation from marrying (Scheerenberger, 1987). No group of women with disabilities has been as severely discriminated against in terms of their reproductive rights as women with mental retardation and some of the myths surrounding women with mental retardation, such as the myth of their uncontrollable sexuality, are unfortunately still very much alive today (Sank & Lafleche, 1981).
Sexual abuse of women and children with disabilities is an area that has received growing attention in recent years (Watson, 1984). Much of the literature in this area is based on studies which show that women with disabilities are at a much greater risk of being sexually abused than other women (Craine, et al., 1988; Musick, 1984; Senn, 1988). This is true in society in general, and within residential facilities in particular. One author reports that sexual assault and battering may be two or three times higher for women with disabilities than for other women (O'Toole, 1990). Others report that women in institutions are at a much greater risk of being sexually abused than other women with disabilities (Musick, 1984; Stefan, 1987).
It may seem like a contradiction that women with disabilities are not seen as sexual beings and at the same time they are at a much greater risk of being sexually abused. Those who have studied sexual abuse, for example Cole (1984), have documented that sexual abuse has more to do with oppressive use of power than it has to do with sex. Based on their work with sex offenders, Longo and Gochenour (1981) report that sexual abuse is more related to issues of control and power than to sex. They claim that abusers look for and use vulnerability to create the opportunity to rape. This vulnerability is increased in people who are marginalized, dependent, and in need of affection. Thus, the more vulnerable and powerless people are, the more they are at risk of being sexually abused. Existing studies have documented that women with disabilities are at a greater risk than any other group of women of being sexually abused. Yet, professionals within the human service system continue to ignore this widespread abuse. These chilling realities have led Asch and Fine (1988: 23) to wonder "...how many of these same women have been sterilized to keep the effects of rape from the public eye."
Most studies indicate that boys are more likely to be identified as needing special education than girls. While boys count for 51% of all students in elementary and secondary schools, they can count for up to 75% of students in special education classes (Russo & Jansen, 1988). Researchers have speculated why boys are more readily identified as needing special education. Some authors have suggested that this reflects discrimination against boys with disabilities and deprives them from the benefits of regular education. They suggest that boys are more readily labelled as having a disability and channeled into special education on the grounds of disruptive behaviors. Others have suggested that the overrepresentation of boys in special education reflects the view that educating boys with disabilities is regarded as a priority; they are seen as in need of special education services in order to develop the skills to be able to support themselves and a family later on (Disability Rights Education and Defense Fund, 1983; Russo & Jansen, 1988).
Research also indicates that boys labelled as having mental retardation have higher IQs than girls with the same label. Gillespie-Silver and Heshusius (1981) have suggested that the reason for this may be that the stereotypes of a female and a person with mental retardation are very similar, both are seen as illogical, dependent, emotional, and needing protection. Girls may therefore not be labelled as having mental retardation unless they have significantly low intelligence.
Although the overrepresentation of boys in special education is one of the best documented gender-influence on special education placement, at least one study has reported girls as overrepresented in certain types of special educational programs. In their study of 8,000 people with disabilities, the Disability Rights Education and Defense Fund (1983) found among other things that girls with physical disabilities were more likely to be placed in segregated special schools than boys with physical disabilities. The authors suggest that these differences stem from the assumption that males must support themselves and a family and therefore need a better education.
The influence of gender on labelling and special education placement is further complicated by the influence of race and class. It has been documented that children, especially boys, of minority races are grossly overrepresented in special education programs, especially programs for students with mild mental retardation (Jones, 1976; Mercer, 1973; Tomlinson, 1982).
A similar study of the influence of income support on the lives of women with disabilities was conducted by Mudrick (1988). She found that compared to men with disabilities, women with disabilities received less from public income support programs, despite their often greater need. Mudrick demonstrates how crucial income support is to the livelihood of women with disabilities. At the same time, income support is usually both less accessible and smaller for women with disabilities than for men with disabilities. Mudrick suggests the reason for this is partly due to the misfit between women's work patterns and the design of the programs, and partly rooted in the stereotypical attitudes toward women's economic roles and women's family roles, as well as attitudes toward people with disabilities.
The evidence available to date leads to the conclusion that the economy in general, and the specialized services in particular, restrict the employment opportunities and lives of women with disabilities.
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