updated November 12, 2002
This is an abbreviated list highlighting selected publications by Center on Human Policy staff and associates. These are not available through the Center on Human Policy or Human Policy Press, but may be obtained in several ways. Books and journal articles may be obtained through your local library, or through the Interlibrary Loan service of your library, if the library does not own the book or journal in question. Books, of course, may also be ordered through your local bookstore.
updated November 12, 2002
Shoultz, B. (in press). Jimmy Tanahashi's vow: Working for the Dharma in the West. Journal of Religion, Disability & Health.
Taylor, S. J. (in press). Classifying the other. In S. Snyder & D. Mitchell (Eds.), Eugenics in America: A Disability Studies sourcebook, 1890-1935. University of Michigan Press.
Anderson, L., Prouty, R., & Lakin, K.C. (1999, October). Trends and milestones: People living in settings other than congregate care now account for 44% of HCBS recipients. Mental Retardation, 37(5), 428-429.
Anderson, L., Prouty, R., & Lakin, K. C. (1999, December). Trends and milestones: Closure of large state facilities and reductions of resident populations. Mental Retardation, 37(6), 509-510.
Bogdan, R., & Taylor, S. J. (2001). Building stronger communities for all: Thoughts about community participation for people with developmental disabilities. In A. Tymchuk, K. Charlie Lakin, & R. Luckasson (Eds.), The forgotten generation: The status and challenges of adults with mild cognitive limitations (pp. 191-199). Baltimore: Paul H. Brookes Publishing Co.
Felt, P. (with support from Pam Walker). (2000). My life in L'Arche. In R. Traustadottir and Kelley Johnson (Eds.), Women with intellectual disabilities: Finding a place in the world (pp. 217-228). London: Jessica Kingley Publishers.
Hall, M. M. (1998). The 30 year journey: Experiences of progressive inclusion from the perspectives of three adults with physical disabilities. Exceptionality Education Canada, 8(2), 57-80.
Kennedy, M. J. (1998). The disability blanket. Mouth: Voice of the Disability Nation, IX(4), 17-18.
Kennedy, M. J. (1998). Invited commentary: Response to articles on self-determination. JASH, 23(1), 47-49.
Kennedy, M. J. (assisted by Shoultz, B.). (1999). Who teaches us? In H. Bersani (Ed.), Responding to the challenge: A festechrift in honor of Gunnar Dybwad. Cambridge: Brookline Books.
Kennedy, M. J. (2000). Opening the doors of opportunity for the year 2000 and beyond. Mental Retardation, 38(4), 373-374.
Lakin, K.C., Anderson, L., Prouty, R., & Polister, B. (1999, February) Trends and milestones: State institution populations less than one-third of 1977, Residents older with more impairments. Mental Retardation, 37(1), 85-86.
Lakin, K.C., Anderson, L., Prouty, R., & Polister, B. (1999, June). Trends and milestones: Community residential services would require expansion of 72% to serve everyone in community settings. Mental Retardation, 37(3), 251-254.
Lakin, K.C., Anderson, L., & Prouty, R. (1999, August). Trends and milestones: Medicaid HCBS "waiver" recipients are now twice the number of Medicaid ICF/MR residents. Mental Retardation, 37(4), 341-343.
Larson, S.A., Hewitt, A., & Anderson, L.L. (1999). Staff recruitment challenges and interventions in agencies supporting people with developmental disabilities. Mental Retardation, 37(1), 36-46.
Larson, S. A., & Lakin, K.C. (1999). A longitudinal study of recruitment and retention in small community homes supporting persons with developmental disabilities. Mental Retardation, 37(4), 178-191.
Lyle O'Brien, C., & O'Brien, J. (2002). The origins of person-centered planning: A community of practice perspective. In S. Holburn & P. M. Vietze (Eds.), Person-centered Planning: Research, practice, and future directions (pp. 3-27). Baltimore: Paul H. Brookes Publishing Co.
Metzel, D. S., & Walker, P. M. (2001, Fall). The illusion of inclusion: Geographies of the lives of people with developmental disabilities in the United States. Disability Studies Quarterly, 21(4), 118-134.
O'Brien, J. (2002). Numbers and faces: The ethics of person-centered planning. In S. Holburn & P. M. Vietze (Eds.), Person-centered Planning: Research, practice, and future directions (pp. 399-414). Baltimore: Paul H. Brookes Publishing Co.
Shoultz, B. (1997, Spring). Review of Family caregiving in mental illness. Disability Studies Quarterly, 325-326.
Shoultz, B. (1998, August). Review of The ABC-CLIO companion to the disability rights movement. Mental Retardation, 36(3), 332.
Shoultz, B. (1998). Solidarity and support: Lesbians with and without disabilities as allies for each other. Disability Studies Quarterly, 18(3), 190-197.
Taylor, S. J. (1998). Commentary of constructing a psychology of teaching and learning. In K. Seifert (Ed.), Constructing a psychology of teaching and learning. Boston: Houghton Mifflin.
Taylor, S. J. (1999). Review of Deinstitutionalising women: An ethnographic study of institutional closure. American Journal on Mental Retardation, 104(6), 564-567.
Taylor, S. J. (2000). "You’re not a retard, you’re just wise": Disability, social identity, and family networks. Journal of Contemporary Ethnography, 29(1), 58-92.
Taylor, S. J. (2001). Caught in the continuum: A critical analysis of the principle of the least restrictive environment. In D. Fisher & D. L. Ryndak (Eds.), The foundations of inclusive education: A compendium of articles on effective strategies to achieve inclusive education originally published in JASH (pp. 13-25). Baltimore: TASH (reprinted from JASH, 13(1), 41-53).
Taylor, S. J. (2001). The continuum and current controversies in the USA. Journal of Intellectual & Developmental Disability, 26(1), 15-33.
Taylor, S. J. (2001). Foreword. In D. Fisher & D. L. Ryndak (Eds.), The foundations of inclusive education: A compendium of articles on effective strategies to achieve inclusive education orginally published from JASH(pp. 5-7). Baltimore: TASH.
Taylor, S. (2001, November/December). "You're not a retard, you're just wise." Mouth Magazine, 12(4), 26-29.
Taylor, S. J., & Blatt, S. D. (1999). In search of the promised land: The collected papers of Burton Blatt. Washington, DC: American Association on Mental Retardation.
Taylor, S. J., & Bogdan, R. (1998). Introduction to qualitative research methods (3rd ed.). New York: John Wiley.
Taylor, S. J., Bogdan, R., & Walker, P. (2000). Qualitative research. In A. E. Kazdin (Ed.), Encyclopedia of psychology (Vol. 6), 489-491. Washington, DC & Oxford, NY: American Psychological Association and Oxford University Press.
Walker, P. (1999). From community presence to sense of place: Community experiences of adults with developmental disabilities. JASH, 24(1), 23-32.
Walker, P. (1999). Review of Aging, rights, and quality of life: Prospects for older people with developmental disabilities. Journal of The Association for Persons with Severe Handicaps, 24(4), 306-311.
Ward, N. (with support from Bonnie Shoultz). (2000). My leadership career. In R. Traustadottir and Kelley Johnson (Eds.), Women with intellectual disabilities: Finding a place in the world (pp. 172-181). London: Jessica Kingsley Publishers.
Apter, D. S. (1994). From dream to reality: A participant's view of the implementation of Part H of P.L. 99-457. Journal of Early Intervention, 18(2), 131-140.
Apter, D. S., & Songer, N. S. (1994). New collaborations: Professional-family partnerships. In G. L. Ensher & D. A. Clark (Eds.), Newborns at risk: Medical care and psychoeducational intervention (2nd. ed.) (pp. 347-364). Gaithersburg, MD: Aspen Publishers.
Biklen, D. (1990). Social policy, social systems, and educational practice. In L. Meyer, C. Peck & L. Brown (Eds.), Critical issues in the lives of people with disabilities (pp. 387-389). Baltimore: Paul H. Brookes Publishing Co.
Biklen, D. (1992). Schooling without labels: Parents, educators, and inclusive education. Philadelphia: Temple University Press.
Bogdan, R. (1992). A "simple" farmer accused of murder: Community acceptance and the meaning of deviance. Disability, Handicap & Society, 7(4), 303-320.
Bogdan, R. (1993). In defense of Freak Show. Disability, Handicap & Society, 8(1), 91-94.
Bogdan, R., & Lutfiyya, Z. M. (1992). Standing on its own: Qualitative research in special education. In W. Stainback & S. Stainback (Eds.), Controversial issues confronting special education: Divergent perspectives (pp. 243-255). Boston: Allyn & Bacon.
Bogdan, R., & Taylor, S. J. (1990). Looking at the bright side: A positive approach to qualitative research. Qualitative Sociology, 13(2), 183-192.
Bogdan, R., & Taylor, S. J. (1990). "What's in a name?". In A. Brechlin & J. Walmsley (Eds.), Making connections: Reflecting on the lives and experiences of people with learning difficulties (pp. 76-81). London: Hodder & Stoughton.
Bogdan, R., & Taylor, S. J. (1994). A positive approach to qualitative evaluation and policy research in social work. In E. Sherman & W. Reid (Eds.), Qualitative research in social work (pp. 293-302). New York: Columbia University Press.
Bogdan, R., & Taylor, S. J. (1994). The social meaning of mental retardation: Two life stories. New York: Teachers College Press.
Ferguson, P. M., Ferguson, D. L., & Taylor, S. J. (Eds.). (1992). Interpreting disability: A qualitative reader. New York: Teachers College Press.
Hagner, D., Rogan, P., & Murphy, S. (1992). Facilitating natural supports in the workplace: Strategies for support consultants. Journal of Rehabilitation, 58(1), 29-34. Kennedy, M. J. (1990). What quality assurance means to me: Expectations of consumers. In V. Bradley & H. Bersani, Jr. (Eds.), Quality assurance for persons with developmental disabilities: It's everybody's business (pp. 35-46). Baltimore: Paul H. Brookes Publishing Co.
Kennedy, M. J. (1994). The disability blanket. Mental Retardation, 32(1), 74-76.
Kennedy, M. (1996). Self-determination and trust: My experiences and thoughts. In D. J. Sands & M. Wehmeyer (Eds.), Self-determination across the life span: Independence and choice for people with disabilities (pp. 37-49). Baltimore, MD: Paul H. Brookes Publishing Co.
Larson, S. A., & Lakin, K. C. (1992). Direct-care staff stability in a national sample of small group homes. Mental Retardation, 30(1), 15-22.
Lehr, S., & Lehr, R. (1990). Getting what you want: Expectations of families. In V. Bradley & H. Bersani, Jr. (Eds.), Quality assurance for persons with developmental disabilities: It's everybody's business (pp. 61-76). Baltimore: Paul H. Brookes Publishing Co.
Lutfiyya, Z. M. (1991). "A feeling of being connected": Friendships between people with and without learning difficulties. Disability, Handicap & Society, 6(3), 233-245.
Lutfiyya, Z. M. (1993). When "staff" and "clients" become friends. In A. N. Amado (Ed.), Friendships and community connections between people with and without developmental disabilities (pp. 97-108). Baltimore: Paul H. Brookes Publishing Co.
Murphy, S. (1992). On being LD: Perspectives and strategies of young adults. New York: Teachers College Press.
Murphy, S., & Rogan, P. (Spring, 1992). Closing the sheltered workshop: A case study of agency change. OSERS News in Print, 29-33.
Murphy, S. T., & Rogan, P. M. (1995). Closing the shop: Conversion from sheltered to integrated work. Baltimore, MD: Paul H. Brookes Publishing Co.
O'Brien, J. (1990). Developing high quality services for people with developmental disabilities. In V. J. Bradley & H. A. Bersani (Eds.), Quality assurance for individuals with developmental disabilities: It's everybody's business (pp. 17-31). Baltimore: Paul H. Brookes Publishing Co.
O'Brien, J. (1991). Against pain as a tool in professional work on people with severe disabilities. Disability, Handicap & Society, 6(2), 81-90.
O'Brien, J. (1994). Down stairs that are never your own: Supporting people with developmental disabilities in their own homes. Mental Retardation, 32(1), 1-6.
O'Brien, J., & Lyle O'Brien, C. (1992). Members of each other: Perspectives on social support for people with severe disabilities. In J. Nisbet (Ed.), Natural supports in school, at work, and in the community for people with severe disabilities (pp. 17-63). Baltimore: Paul H. Brookes Publishing Co.
O'Brien, J., & Lyle O'Brien, C. (1993). Unlikely alliances: Friendships and people with developmental disabilities. In A. N. Amado (Ed.), Friendships and community connections between people with and without developmental disabilities (pp. 9-39). Baltimore: Paul H. Brookes Publishing Co.
O'Brien, J., & Lyle O'Brien, C. (1994). More than just a new address: Images of organization for supported living agencies. In V. J. Bradley, J. W. Ashbaugh, & B. C. Blaney (Eds.), Creating individual supports for people with developmental disabilities: A mandate for change at many levels (pp. 109-140). Baltimore: Paul H. Brookes Publishing Co.
O'Brien, J., & Lyle O'Brien, C. (1996). Inclusion as a force for school renewal. In S. Stainback & W. Stainback (Eds.), Inclusion: A guide for educators (pp. 29-45). Baltimore: Paul H. Brookes Publishing Co.
O'Brien, J., & Mount, B. (1991). Telling new stories: The search for capacity among people with severe handicaps. In L. Meyer, C. Peck, & L. Brown (Eds.), Critical issues in the lives of people with severe disabilities (pp. 89-92). Baltimore: Paul H. Brookes Publishing Co.
O'Connor, S. (1992). Supporting families: What they need versus what they get. OSERS News in Print, V(1), 7-11.
Racino, J. A., Walker, P., O'Connor, S., & Taylor, S. J. (Eds.) (1992). Housing, support, and community: Choices and strategies for adults with disabilities. Baltimore: Paul H. Brookes Publishing Co.
Rogan, P., & Murphy, S. (1991). Supported employment and vocational rehabilitation: Merger or misadventure? Journal of Rehabilitation, 57(2), 39-45.
Shoultz, B., & Smith, P. M. (1995). Shifting roles of parents and families. In O. C. Karan & S. Greenspan (Eds.), Community rehabilitation services for people with disabilities (pp. 169-186). Andover, MA: Andover Medical Publishers, Inc.
Shoultz, B., & Ward, N. (1996). Self-Advocates Becoming Empowered: The birth of a national organization in the U.S. In G. Dybwad & H. Bersani, Jr. (Eds.), New voices: Self-advocacy by people with disabilities (pp. 216-234). Cambridge, MA: Brookline Books.
Taylor, S. J. (1991). Leaving the field: Research, relationships, and responsibilities. In W. B. Shaffir & R. A. Stebbins (Eds.), Experiencing fieldwork: An inside view of qualitative research (pp. 238-247). Newbury Park, CA: Sage Publications.
Taylor, S. J. (1992). The paradox of regulations: A commentary. Mental Retardation, 30(3), 185-190.
Taylor, S. J. (1994). In support of research on quality of life, but against QOL. In D. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues (pp. 260-265). Cambridge, MA: Brookline Books.
Taylor, S. J. (1994/1995). On rhetoric: A response to Fuchs and Fuchs. Exceptional Children, 61(3), 301-302.
Taylor, S. J. (1995). Deinstitutionalization. In A. E. Dell Orto & R. P. Martinelli (Eds.), Encyclopedia of disability and rehabilitation (pp. 247-249). New York: Macmillan Publishing Co.
Taylor, S. J. (1995). Living in the community: Beyond the continuum. In L. Nadel & D. Rosenthal (Eds.), Down syndrome: Living and learning in the community (pp. 249-255). New York: Wiley-Liss.
Taylor, S. J. (1996). Disability studies and mental retardation. Disability Studies Quarterly, 16(3), 4-6.
Taylor, S. J., & Bogdan, R. (1993). Promises made and promises to be broken. In P. Wehman (Ed.), The ADA mandate for social change (pp. 255-268). Baltimore: Paul H. Brookes Publishing Co.
Taylor, S. J., & Bogdan, R. (1994). Qualitative research methods and community living. In M. Hayden & B. Abery (Eds.), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities (pp. 43-63). Baltimore: Paul H. Brookes Publishing Co.
Taylor, S. J., & Bogdan, R. (1996). Quality of life and the individual's perspective. In R. L. Schalock (Ed.), Quality of life: Conceptualization and measurement (Vol. I) (pp. 11-22). Washington, DC: American Association on Mental Retardation.
Taylor, S. J., Bogdan, R., & Lutfiyya, Z. M. (Eds.). (1995). The variety of community experience: Qualitative studies of family and community life. Baltimore: Paul H. Brookes Publishing Co.
Taylor, S. J., Bogdan, R., & Racino, J. A. (Eds.). (1991). Life in the community: Case studies of organizations supporting people with disabilities. Baltimore: Paul H. Brookes Publishing Co.
Taylor, S. J., & Harris, P. J. (1996). Selected annotated bibliography: Disability studies and mental retardation. Disability Studies Quarterly, 16(3), 6-13.
Taylor, S. J., & Racino, J. A. (1991). Community living: Lessons for today. In L. Meyer, C. Peck & L. Brown (Eds.), Critical issues in the lives of people with severe disabilities (pp. 235-238). Baltimore: Paul H. Brookes Publishing Co.
Taylor, S. J., Racino, J. A., & Walker, P. (1996). Inclusive community living. In W. Stainback & S. Stainback (Eds.), Controversial issues confronting special education (2nd ed.). Boston: Allyn & Bacon.
Traustadottir, R. (1991). Mothers who care: Gender, disability and family life. Journal of Family Issues, 12(2), 211-228.
Traustadottir, R. (1993). The gendered context of friendships. In A. N. Amado (Ed.), Friendships and community connections between people with and without developmental disabilities (pp. 109-127). Baltimore: Paul H. Brookes Publishing Co.
Traustadottir, R., Lutfiyya, Z. M., & Shoultz, B. (1994). Community living: A multicultural perspective. In M. Hayden & B. Abery (Eds.), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities (pp. 405-426). Baltimore: Paul H. Brookes Publishing Co.
Walker, P. (1991). Where there is a way, there is not always a will: Technology, public policy, and the school integration of children who are technology assisted. Children's Health Care, 20(2), 68-74.
Walker, P. (1994). Housing and support services: Expanding options for people with severe disabilities. NARIC Quarterly, 4(1), 1, 4-6, 15-17.
Walker, P. (1994). Promoting integrated recreation and leisure opportunities for adults. In M. S. Moon (Ed.), Making school and community recreation fun for everyone: Places and ways to integrate (pp. 163-178). Baltimore: Paul H. Brookes Publishing Co.
Ward, N., & Shoultz, B. (1996). People First of Nebraska: 8 years of accomplishment. In G. Dybwad & H. Bersani, Jr. (Eds.)., New voices: Self-advocacy by people with disabilities (pp. 203-215). Cambridge, MA: Brookline Books.
Biklen, D. (1987). The culture of policy: Disability images and the analogues in public policy. Policy Studies Journal, 15(3), 515-535.
Biklen, D. (1988). The myth of clinical judgment. Journal of Social Issues, 44(1), 127-140.
Biklen, D. (1989). Making difference ordinary. In S. Stainback, W. Stainback, & M. Forest (Eds.), Educating all students in the mainstream of regular education (pp. 235-248). Baltimore: Paul H. Brookes Publishing Co.
Biklen, D., Corrigan, C., & Quick, D. (1989). Beyond obligation: Students' relations with each other in integrated classes. In D. K. Lipsky & A. Gartner (Eds.), Beyond separate education: Quality education for all (pp. 207-221). Baltimore: Paul H. Brookes Publishing Co.
Bogdan, R., & Knoll, J. (1988). The sociology of disability. In E. L. Meyen & T. M. Skrtic (Eds.), Exceptional children and youth: An introduction (3rd ed.) (pp. 449-477). Denver: Love Publishing Company.
Bogdan, R., & Taylor, S. J. (1987). Toward a sociology of acceptance: The other side of the study of deviance. Social Policy, 18(2), 34-39.
Bogdan, R., & Taylor, S. J. (1989). Relationships with severely disabled people: The social construction of humanness. Social Problems, 36(2), 135-148.
Ferguson, D. L., Ferguson, P. M., & Bogdan, R. C. (1987). If mainstreaming is the answer, what is the question? In V. Richardson-Koehler (Ed.), Educator's handbook: A research perspective (pp. 394-419). New York: Longnen.
Ford, A., Schnorr, R., Meyer, L., Davern, L., Black, J., & Dempsey, P. (Eds.). (1989). The Syracuse community-referenced curriculum guide for students with moderate and severe disabilities. Baltimore: Paul H. Brookes Publishing Co.
Hagner, D., & Murphy, S. (1989). Closing the gap on sheltered work: Case studies of organizational change. Journal of Rehabilitation, 55, 68-74.
Manion, M. L., & Bersani, H. (1987). Mental retardation as a Western sociological construct: A cross-cultural analysis. Disability, Handicap & Society, 2(3), 231-245.
Schnorr, R., Ford, A., Davern, L., Park-Lee, S., & Meyer, L. (1989). The Syracuse curriculum revision manual: A group process for developing a community-referenced curriculum guide. Baltimore: Paul H. Brookes Publishing Co.
Taylor, S. J. (1987). Observing abuse: Professional ethics and personal morality in field research. Qualitative Sociology, 10(3), 288-302.
Taylor, S. J. (1987). "They're not like you and me": Institutional attendants' perspectives on residents. Child and Youth Services: Qualitative Research and Evaluation in Group Care, 8(3/4), pp. 109-125.
Taylor, S. J. (1988). Caught in the continuum: A critical analysis of the principle of the least restrictive environment. Journal of The Association for Persons with Severe Handicaps, 13(1), 45-53.
Taylor, S. J., Biklen, D., & Knoll, J. (Eds.). (1987). Community integration for people with severe disabilities. New York: Teachers College Press.
Taylor, S. J., & Bogdan, R. (1989). On accepting relationships between people with mental retardation and nondisabled people: Towards an understanding of acceptance. Disability, Handicap & Society, 4(1), 21-36.
Taylor, S. J., Knoll, J. A., Lehr, S., & Walker, P. M. (1989). Families for all children: Value-based services for children with disabilities and their families. In G. H. S. Singer & L. K. Irvin (Eds.), Support for caregiving families: Enabling positive adaptation to disability (pp. 41-53). Baltimore: Paul H. Brookes Publishing Co.
Taylor, S. J., Lakin, K. C., & Hill, B. K. (1989). Permanency planning for children and youth: Out-of-home placement decisions. Exceptional Children, 55(6), 541-549.
Taylor, S. J., & Searl, S. J. (1987). The disabled in America: History, policy, and trends. In P. Knoblock (Ed.), Understanding exceptional children and youth (pp. 5-64). Boston: Little, Brown.
Walker, P., & Edinger, B. (1988). The kid from Cabin 17. Camping Magazine, May 1988, 18-21.
Preparation of most of these publications was supported in part by one or more of the following:
These contracts and agreements were supported by the U.S. Department of Education, Office of Special Education and Rehabilitative Services, National Institute on Disability and Rehabilitation Research (NIDRR).
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