Apolloni, T., Meucci, S., & Triest, G. (1981). Monitoring
the quality of life experienced in living arrangement: A guide to
citizen participation. Sacramento: California State
Council on Developmental Disabilities, 1507 21st Street, Suite 320,
Sacramento, CA 95816.
This paper provides a rationale as well as concrete suggestions for
implementing a citizen monitoring system as a supplement to
professional reviews.
Biklen, S. K., & Moseley, C. R. (1988). "Are you retarded?" "No,
I'm Catholic.": Qualitative methods in the study of people with
severe handicaps. Journal of the Association for Persons
with Severe Handicaps, 13(3), 155-162.
The article offers valuable guidelines for interviewing individuals
with limited use of language.
Bradley, V. J., Ashbaugh, J. W., Harder, W. P., Stoddard, S., Shea,
A., Allard, M. A., Mulkern, V., Spence, R. A., & Absalom, D.
(1984). Assessing and enhancing the quality of services: A
guide for the human service field. Cambridge, MA: Human
Services Research Institute, 2336 Massachusetts Avenue, Cambridge,
MA 02140.
This report provides a valuable analysis of the philosophical and
practical issues related to quality assurance followed by a
framework for developing cost effective review systems that
encourage innovative services.
Bradley, V. J., & Bersani, H. A. (Eds.). (1990). Quality
assurance for individuals with developmental disabilities: It's
everybody's business. Baltimore: Paul H. Brookes
Publishing Co., P.O. Box 10624, Baltimore, MD 21285-0624.
In presenting the varying perspectives on quality assurance,
including those of consumers and family developing a more
responsive system.
Mason, C. Y. (1990). Consumer choice and
satisfaction. Washington, DC: National Association of
Rehabilitation Facilities, P.O. Box 17675, Washington, DC
20041.
This is a report of a consumer survey conducted to measure the
degrees of choice and satisfaction in the lives of individuals
receiving supported employment services. Included are examples of
questions and techniques found to be effective.
McKnight, J. L. (1989). First do no harm: A policy maker's
guide to evaluating human services and their alternatives.
Evanston, IL: Center for Urban Affairs, Northwestern University,
2040 Sheridan Road, Evanston, IL 60208
From a unique perspective, this paper shows the need and offers
suggestions for evaluating the negative effects inherent in the
structure of human service intervention.
O'Brien, J., O'Brien, C. L., & Schwartz, D. (Eds.). (1990).
What can we count on to make and keep people safe?
Perspectives on creating effective safeguards for people with
developmental disabilities. Decatur, GA: Responsive
Systems Associates. (Available from: Center on Human Policy,
Syracuse University, 805 S. Crouse Avenue, Syracuse, NY 13244-
2280)
Members of the Pennsylvania Developmental Disabilities Planning
Council discuss the issue of how to strengthen community ties and
improve services to increase the safety of individuals who require
long term assistance.
Options in Community Living. (1987). Options policy on
quality of life. Madison, WI: Options in Community
Living, 22 North Second Street, Madison, WI 53704.
Options in Community Living, a support service agency for adults
living in the community, prepared this policy statement to identify
conditions that must exist to ensure a valued lifestyle in the
community.
Patterson, J., & Associates. (1992). Quality of life review
& Quality enhancement process. Tucson, AZ: Quality
Associates, 3211 West Westwood Place, Tucson, AZ 85745.
This is a workbook designed to guide team reviews of an
individual's quality of life. Also included are strategies for
enhancing the planning process.
Schalock, R. L. (Ed.). (1990). Quality of life:
Perspectives and issues. Washington, DC: American
Association on Mental Retardation, 1719 Kalorama Road, NW,
Washington, DC 20009.
Quality of life is examined here from a variety of critical
perspectives, including conceptualization for the purpose of
measurement.
Schwartz, D. B. (1992). Creating a conceptual revolution in
community and disability. Boston: Brookline Books, P.O.
Box 1046, Cambridge, MA 02238.
David Schwartz, Director of the Pennsylvania Developmental
Disabilities Planning Council, reflects on the Pennsylvania
experience. He discusses the dilemmas surrounding funding
decisions and quality assurance issues that result.
Taylor, S. J. (1992). The paradox of regulations: A commentary.
Mental Retardation, 30(3), 185-190.
This article reframes the relationships between regulations and
quality of life. Though they sometimes act as a safeguard against
institutional abuse, regulations are shown to undermine the
potential for quality of life.
Wieck, C., Nelson, J., Reedstrom, C., Starr, J., & Stone, N.
(1989). Quality assurance resources: Instruments,
organizations, and publications. Arlington, TX: The Arc-
US, P.O. Box 6109, Arlington, TX 76005.
This book describes and provides ordering information for quality
assurance instruments, organizations, and publications for
monitoring services.
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