Outside Organizations and Publications

Organizations, Agencies, Clearinghouses

  • American Association of People with Disabilities (AAPD)
    AAPD is a non-profit, non-partisan, cross-disability organization whose goals are unity, leadership and impact.
  • The Arc of the United States
    The Arc (formerly Association for Retarded Citizens of the United States) is the country’s largest voluntary organization committed to the welfare of all children and adults with mental retardation and their families. This is a very large and developing site. It offers an impressive assortment of articles, position papers, links, legislative alerts and more.
  • Autism National Committee (Autcom)
    This is the only autism advocacy organization dedicated to “Social Justice for All Citizens with Autism” through a shared vision and a commitment to positive approaches.
  • Consortium for Citizens with Disabilities (CCD)
    CCD is a coalition of national disability organizations working together to advocate for national public policy that ensure the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
  • Cornucopia of Disability Information (CODI)
    CODI serves as a community resource for consumers and professionals by providing disability information in a wide variety of areas. The information addresses local (Buffalo & WNY), state, national and international audiences. Submissions are welcome from these communities. Areas include education, statistics, government documents, computer access, legal, publications, bibliographic references, aging, assistive technology, and universal design.
  • DisabilityInfo.gov
    DisabilityInfo.gov provides quick and easy access to comprehensive information about disability programs, services, laws and benefits.
  • The ERIC Clearinghouse on Disabilities and Gifted Education (ERIC EC)
    The ERIC Clearinghouse for Disabilities and Gifted Education (ERICEC) was disbanded by the US Government as of December 19, 2003. This is an archive of the material available on that site at that time created by Hoagies’ Gifted Education Page for general use, updated with current links wherever possible.
  • Institute on Independent Living
    The Institute’s purpose is to promote the opportunities of persons with disabilities to gain more personal and political power, self-determination, full participation and equality, both in Sweden and internationally through educational activities. These activities may consist of the production and dissemination of educational materials and information, planning and organizing of courses, seminars and study visits.
  • National Association of Developmental Disabilities Councils (NACDD)
    The NADDC promotes national policy which enables individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community.
  • National Association of State Directors of Developmental Disabilities Services, Inc. (NASDDDS)
    “The National Association of State Directors of Developmental Disabilities (NASDDDS) is a nonprofit organization, established in 1964 to improve and expand public services to people with mental retardation and other developmental disabilities. The Association’s goal is to promote and assist state agencies in developing effective, efficient service delivery systems that furnish high-quality supports to people with developmental disabilities.”
  • National Association of State Medicaid Directors (NASMD)
    The National Association of State Medicaid Directors (NASMD) is a bipartisan, professional, nonprofit organization of representatives of state Medicaid agencies (including the District of Columbia and the territories). The primary purposes of NASMD are to serve as a focal point of communication between the states and the federal government and to provide an information network among the states on issues pertinent to the Medicaid program.
  • National Center for the Dissemination of Disability Research (NCDDR)
    The NCDDR’s purpose is to enhance the dissemination efforts of NIDRR-funded research projects and to increase the accessibility of research outcomes for the benefit of their consumers, particularly those from minority backgrounds.
  • National Council on Disability
    The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with disabilities. NCD’s overall purpose is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature of severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.
  • National Disability Rights Network (formerly National Association of Protection and Advocacy Systems)
    The NDRN promotes national policy which enables individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community.
  • The National Information Center for Children and Youth with Disabilities (NICHCY)
    NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22).
  • The National Institute on Deafness and Other Communication Disorders
    “Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. The Institute also conducts and supports research and research training related to disease prevention and health promotion; addresses special biomedical and behavioral problems associated with people who have communication impairments or disorders; and supports efforts to create devices which substitute for lost and impaired sensory and communication function.”
  • The National Organization on Disability
    The National Organization on Disability promotes the full and equal participation of America’s 54 million men, women and children with disabilities in all aspects of life.
  • National Rehabilitation Information Center (NARIC)
    NARIC is a library and information center on disability and rehabilitation, and collects and disseminates the results of federally funded research projects.
  • Clearinghouse on Aging and Developmental Disabilities
    Located at the University of Illinois’ RRTC on Aging and Developmental Disabilities, this is an international resource for information on aging and developmental disabilities. It disseminates the research findings and translates them into products for policy makers.
  • Spaulding for Children
    Spaulding for Children believes every child is adoptable and every child deserves a permanent family. This multi-faceted organization provides help to children who wait the longest for permanency and support services for their adoptive, foster and kinship families. Nationwide, Spaulding’s NRC provides training, consultation and informational materials for professionals, organizations and parents.
  • TASH (formerly The Association for Persons with Severe Handicaps)
    TASH is an international advocacy association of people with disabilities, their family members, other advocates, and people who work in the disability field. TASH believes that no one with a disability should be forced to live, work, or learn in a segregated setting; that all individuals deserve the right to direct their own lives. TASH’s mission is to eliminate physical and social obstacles that prevent equity, diversity, and quality of life.
  • World Institute on Disability (WID)
    WID is an international public policy center dedicated to carrying out cutting-edge research on disability issues and overcoming obstacles to independent living.

Research Centers

  • The Elizabeth M. Boggs Center on Developmental Disabilities University Affiliated Program of New Jersey
    The Boggs Center emphasizes a life span approach to the needs of individuals with the full range of developmental disabilities.
  • The Center for the Study and Advancement of Disability Policy (CSADP)
    The Center for the Study and Advancement of Disability Policy (CSADP) provides public education, leadership development and training, technical assistance and information dissemination, and conducts action-research and analysis of public policy issues affecting individuals with disabilities and their families.
  • Center for Community Inclusion & Disability Studies
    “The Center for Community Inclusion, Maine’s University Affiliated Program, is a partnership of people bringing together the resources of the community and the University to improve the quality of life for people with disabilities and those they consider their families. We support self-determination and advocacy for people with disabilities throughout their lives. As agents for social change, we are committed to the principles of community inclusion, interdependence and the inherent abilities of each person to contribute to society. These principles are realized through interdisciplinary educational activities, applied research and research and policy analysis, technical assistance and dissemination of information.”
  • Centre for Research and Education in Human Services
    “The Centre is a charitable, non-profit organization that offers community research, program evaluation, needs assessment and planning expertise using a participatory, action-oriented approach.”
  • The Center for Research on Women with Disabilities (CROWD)
    The Center for Research on Women with Disabilities (CROWD) is a research center that focuses on issues related to health, aging, civil rights, abuse, and independent living. CROWD’s purpose is to promote, develop, and disseminate information to expand the life choices of women with disabilities so that they may fully participate in community life. More specifically, researchers develop and evaluate models for interventions to address specific problems effecting women with disabilities.
  • The Center on Disability & Community Inclusion
    The Center on Disability & Community Inclusion, located at The University of Vermont in Burlington, Vermont, is part of a national network of developmental disabilities programs established to support individuals with disabilities and their families. The Center on Disability & Community Inclusion has adopted a conceptual framework that reflects our values, philosophy and commitment to individuals with disabilities and their families.
  • Institute on Communication and Inclusion
    The Institute on Communication and Inclusion at Syracuse University conducts research, training, and public education designed to expand opportunities for people with disabilities to be heard and to participate fully in society. Faculty, staff and students at Syracuse University founded the Institute in 1992; its purpose is to focus attention on individuals with developmental disabilities who have traditionally been silenced as a result of their own communication disabilities and by social policy and human service practices that ignore their communication potential.
  • GLADNET
    The Global Applied Disability and Information Network on Employment and Training, better known as GLADNET, brings together research centres, universities, enterprises, government departments, and other groups together for the promotion of research as well as the collection, analysis and exchange of information concerning people with disabilities and work.
  • Institute on Disability Culture
    “People with disabilities have forged a group identity. We share a common history of oppression and a common bond of resilience. We generate art, music, literature, and other expressions of our lives, our culture, infused from our experience of disability.”
  • Institute for Human Development
    The Institute’s misssion is to improve the quality of life for persons with developmental disabilities across this entire age span by promoting community inclusion, community membership, independence, productivity, and social participation; and promoting high quality and effective community-based services and individualized supports for persons with developmental disabilities and their families.
  • Institute on Community Inclusion
    The Institute for Community Inclusion supports the rights of children and adults with disabilities to participate in all aspects of the community.
  • Institute on Community Integration
    “We believe that persons with developmental disabilities should live as valued members of our communities, receiving the services and supports they need to fully develop their potential.”
  • Institute on Disability
    The Institute is a University Affiliated Program (UAP) located at the University of New Hampshire that promotes full inclusion of people with disabilities in their communities.
  • Institute on Human Development and Disability (IHDD)
    IHDD works with others to create opportunities that will improve the quality of life for people with disabilities and their families. The IHDD advances the understanding of the abilities of all people through education, research, and public service.
  • Indiana Institute on Disability and Community
    Formerly the Institute for the Study of Developmental Disabilities, the Institute has long been invested in disability and community issues with a mission to improve the lives of people with disability in typical settings. The mission of the Indiana Institute on Disability and Community is to provide leadership that enables communities to include, support, and empower people with disabilities and family members. The Indiana Institute accomplishes this by promoting innovative practices, and policies that facilitate community membership.
  • National Center for the Dissemination of Disability Research (NCDDR)
    The NCDDR’s purpose is to enhance the dissemination efforts of NIDRR-funded research projects and to increase the accessibility of research outcomes for the benefit of their consumers, particularly those from minority backgrounds.
  • Rehabilitation Research and Training Center on Aging with Developmental Diabilities
    Located the University of Illinois at Chicago, the Rehabilitation Research and Training Center on Aging with Developmental Disabilities (RRTCADD) is a national resource for researchers, planners, providers, self-advocates, families and students in the field of aging and developmental disabilities.
  • Rehabilitation Research & Training Center on Workplace Supports
    “The purpose of this center is to identify factors that enhance or inhibit businesses from tapping into a pool of potential employees. Let us be your gateway to information, resources, and services regarding the employment of people with disabilities.”
  • Research Information on Independent Living (RIIL)
    This database contains reviews of research materials concerning independent living issues. RIIL is a joint effort of the Research & Training Center on Independent Living (RTC/IL) at the University of Kansas and the Independent Living Research Utilization (ILRU) program of TIRR.
  • The Rural Institute
    The Montana University Affiliated Rural Institute on Disabilities is guided by values of independence, productivity, integration, and inclusion of individuals with developmental disabilities and their families. The Institute is also home to the Research and Training Center on Rural Rehabilitation Services, whose goal is to solve problems of access to transportation and housing, employment and self-employment, independent living, health and wellness, community planning, and integration faced by people with disabilities living in rural areas and those who serve them.
  • State of the States in Developmental Disabilities
    Established in 1982 to investigate the determinants of public spending for mental retardation/developmental disabilities (MR/DD) services, this project maintains a 20-year longitudinal record of revenue, spending, and programmatic trends in the 50 states and the District of Columbia. Analysis of the rich detail of the data base reveals the impact over time of federal and state fiscal policy, and illustrates important service delivery trends in the states in community living, public and private residential institutions, family support, supported employment, supported living, Medicaid Waivers, demographics, and related areas.

Magazines, Periodicals, Blogs

  • Autism is a World
    This is the companion web site for this documentary about Sue Rubin who is autistic. The documentary takes the viewer on a journey into her mind, into her world and her obsessions. Autism is a World explores Sue’s world, her writings, and the remarkable friendships she has created while in college. Contains links to clips, reviews and a discussion guide.
  • Radio Independent Living
    ILI’s project Radio Independent Living produces documentaries about the struggle for our emancipation, new insights and approaches that make us stronger as persons and as a political movement and about policies and services for self-determination, equal opportunities and citizenship that can be replicated elsewhere.
  • The Disability Resources Monthly Guide to Disability Resources on the Internet “We disseminate information about books, pamphlets, magazines, newsletters, videos, databases, government agencies, nonprofit organizations, telephone hotlines and on-line services that provide free, inexpensive or hard-to-find information to help people with disabilities live independently.”
  • DisabilityWorld
    DisabilityWorld is a web-zine dedicated to advancing an exchange of information and research about the international independent living movement of people with disabilities. The web-zine is the heart of a larger project, IDEAS for the New Millennium, funded in 1999 by the National Institute on Disability and Rehabilitation Research as a five-year project.
  • Electric Edge: Online Edition of Ragged Edge Magazine
    This online edition of Ragged Edge magazine (the successor to Disability Rag) includes the best writing today about the most “ragged issues”–assisted suicide, long-term care, rights, access, and covers the disability experience and what it means to be a crip at the turn of the millenium.
  • Inclusion Daily Express
    “Every day, more and more people with developmental and other disabilities are taking control of their lives! After centuries of being removed from their communities and being abused and exploited, they’re meeting this new century by breaking down barriers and building up new connections. They’re getting involved and showing how they can improve the world around them while making their own dreams become reality. We’re the ‘once-a-day’ email news service that keeps you up to date on this exciting movement toward full community inclusion, self-determination, and human rights!”
  • Information Technology and Disabilities
    “Information Technology and Disabilities (ITD) is an electronic journal devoted to the practical and theoretical issues surrounding the development and effective use of new and emerging technologies by computer users with disabilities. Founded by EASI (Equal Access to Software and Information), ITD features articles on issues affecting educators (K through college), librarians, adaptive technology trainers, rehabilitation counselors, human resources professionals, and developers of adaptive computer hardware and software products. In addition to refereed, in-depth feature articles on issues of concern to our target audience, ITD features a number of regular departments, each edited by an expert in the field. ITD is intended for educators, librarians, academic computing staff, job accommodations/human relations professionals, and others interested in new technology and its effective use by people with disabilities.”
  • Mainstream Magazine
    Online version of the well-known disability magazine.
  • Mouth – Voice of The Disability Nation
    This thought-provoking magazine features investigative journalism, news, and interviews with disability rights activists, reserving some of its harshest criticism for the “helping professions.” Mouth also publishes essays written by people with disabilities, and does not include commercial advertisements.
  • National Center on Disability and Journalism (formerly The Disability Media Project)
    The National Center on Disability and Journalism (NCDJ) is a journalism-based organization that fosters fairness, accuracy and diversity in news reporting about disability issues and people with disabilities.
  • New Mobility Magazine
    “Disability is news, art, politics, humor, healing, recreation, travel, show-biz and rehab-biz, and that’s what we do.”
  • The Strength Coach
    Syndicated radio host Greg Smith is the one-in-a-million, African American power wheelchair user, born with muscular dystrophy, who despite extremely limited physical strength has used his “inner strength” to establish himself as a rising “crossover” media talent with star potential.