BRIEF LIST OF RESOURCE ORGANIZATIONS

INFORMATION PACKAGE ON MANAGED CARE
AND LONG-TERM SUPPORTS
FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES

BRIEF LIST OF RESOURCE ORGANIZATIONS

Center for Managed Long Term Supports for People with Disabilities

Human Services Research Institute
525 Glen Creek Road, NW, #230
Salem, OR 97304
(503) 362-5682
[Email: hsri@hsri.org]
[URL: http://www.hsri.org/manage/CMLTSPD.html]

The National Association of State
Directors of Developmental
Disabilities Services (NADDDS)
113 Oronoco Street
Alexandria, VA 22314
(703) 683-4202
fax (503) 362-7729

This ongoing project involves the provision of training and technical assistance to agencies interested in developing, adapting and using managed care strategies in the delivery of long term supports to people with disabilities. It is a collaborative enterprise of the Human Services Research Institute and the National Association of State Directors of Developmental Disabilities Services. The Center was created in 1995 recognizing the inherent value, risks and inevitability of managed care approaches. It is founded on a common commitment to further managed care approaches that advance the inclusion, self-sufficiency and self-determination of people with developmental disabilities.

Center for Vulnerable Populations

The National Academy for State Health Policy
50 Monument Square, Suite 502
Portland, ME 04101
(207) 874-6524

The Institute for Health Policy
Brandeis University
P.O. Box 9110
Waltham, MA 02254
(617) 736-3900

Co-directed by the National Academy for State Health Policy and the Institute for Health Policy at Brandeis University, the Center for Vulnerable Populations supports research, policy analysis, and best practice studies regarding vulnerable populations and disseminates its work to state health policymakers. The Center is funded by a grant from the Henry J. Kaiser Family Foundation.

Families USA

1334 G Street, NW, Third Floor
Washington, DC 20005
(202) 628-3030
(202) 347-2417
[Email: info@familiesusa.org]
[URL: http://epn.org/families.html]

Families USA is a nonprofit organization that runs many different projects on health care, including one on managed care. Their Managed Care Consumer Protection Project provides information, technical assistance and training to other organizations who provide health care to a variety of consumers. The organizations in the community learn to monitor managed care plans and assist consumers with identified problems. Families USA also serves as a clearinghouse for public policy on a variety of health care issues, including managed care. While their focus as an organization is not specifically on people with developmental disabilities, their training and information can be applied in this area, due in part to the agency's goal of working with a specific community or group and the concerns they voice.

Institute for Health and Disability

Box 721, 420 Delaware Street, S.E.
Minneapolis, MN 55455
V/TTY: (612) 624-3939
fax (612-626-2134
[Email: instihd@tc.umn.edu]
[URL: http://www.peds.umn.edu/Centers/inh/]

The Institute for Health and Disability is a network of programs for children and youth and their families designed to improve the health and functioning of children and youth within the context of their families and communities. These projects share a focus on young people from birth to 24 years of age, and share the fundamental belief that the needs of children with chronic illness or disability share many of the same needs regardless of their medical or health condition.

The Institute for Health and Disability includes the Center for Children with Chronic Illness and Disability, a rehabilitation, research and training Center dedicated to the study and promotion of the psychological and social well-being of children with chronic health conditions and their families, and the National Center for Youth with Disabilities, an information, policy and resource center for youth, plus a host of other projects and programs in the areas of research, training and information dissemination.

MCARE: National Clearinghouse on Managed Care and Long-Term Services and Supports for Adults with Developmental Disabilities and Their Families

Institute on Disability, University of New Hampshire
7 Leavitt Lane, Suite 101
University of New Hampshire
Durham, NH 03824-3512
(603) 862-0034
[Email: MCARE@unh.edu]
[URL: http://www.mcare.unh.edu/]

The Institute on Disability at the University of New Hampshire has established a National Clearinghouse on Managed Care and Long Term Services And Supports. The MCARE clearing house will target national, state, and local policy-makers as well as advocates for people with developmental disabilities and their families, working to assure that the values incorporated into many of our systems, such as self-determination and community inclusion implemented with flexibility and innovation, are embedded in managed care arrangements.

MCARE will work to insure that policy-makers, advocates, families, consumers, researchers, and others have the most up-to-date information available. Information on waivers, managed care arrangements, quality outcomes, and contract specifications will be compiled and made available using the Internet and more traditional forms of print and telecommunications. Additionally, on-line conversations and conferencing will be organized to assist people in their analysis of current trends and emerging issues.

National Association of Child Advocates

1522 K Street, N.W.
Suite 600
Washington, DC 20005
(202) 289-0777

The National Association of Child Advocates (NACA) is an organization that is devoted to the creation and sustenance of state- and community-based child advocacy organizations. With 51 member organizations in 40 states and seven cities and communities, NACA serves as the hub of information exchange among existing and emerging multi-issue child advocacy organizations at the state and local levels.

Most of NACA's member organizations are providing critical leadership on children's health issues in their states and localities. Some are leading broad-based coalitions addressing the many serious issues arising from the rapid transformation in health care delivery systems that is occurring across the country, including the increasing reliance on managed care. Others are engaged in active partnerships with pediatricians, school nurses, and other health care providers concerned about the health and well-being of children. Still others are leading the fight for expansions in health insurance for children through targeted children's health insurance initiatives or statewide comprehensive health care reform. NACA is also the author of Medicaid Managed Care: An Advocate's Guide for Protecting Children.

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INFORMATION PACKAGE ON MANAGED CARE AND LONG-TERM SUPPORTS FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES