INDIVIDUALIZED SUPPORTS FOR ADULTS:
THE EXAMPLE OF THREE RESIDENTIAL SUPPORT AGENCIES

The Center on Human Policy has studied some agencies that provide individualized residential supports for adults with disabilities, including those with severe and multiple impairments or considered to have some challenging behaviors. Unlike many agencies that employ facility-based approaches, these agencies help people find homes and then build in the supports necessary for them to live there. The assumption is that people need stable, safe, and affordable homes in neighborhoods where they choose to live; that they should be involved in choosing where and with whom they live; and that they should have choice and control over how they live and the supports and services they receive.

Options in Community Living
(Madison, Wisconsin) Options in Community Living provides support to 100 people, including some with severe and multiple disabilities, who rent or own their own houses and apartment throughout Dane County, Wisconsin. The agency has moved away from a "clustered apartment" approach whereby people lived in a cluster of apartments located in one apartment complex. Now people live where they choose and with whom they choose--sometimes by themselves, sometimes with roommates--and receive supports at these locations.

About 24 people served by Options employ live-in, paid roommates or personal care attendants to provide full-time support, using a variety of Medicaid and state funding mechanisms. For these people, Options acts as a broker--assisting them to recruit, screen, hire, supervise, and, if necessary, fire their attendants. Options also provides support to about 75 people who do not require live-in assistance but who may need intensive services and supports to remain in their homes.

The agency has three teams of "community support specialists" who provide support, case management, training, and other services. All team members know each person supported by their team and can give each other support and assistance as well as problem-solving help when a dilemma arises. One of the agency's priorities, in terms of support, is to assist people to become part of their neighborhoods and communities, and significant staff time is devoted to this area.

Centennial Developmental Services, Inc.
(Weld County, Colorado) The Residential Support Program of Centennial Developmental Services, Inc., provides support to 56 adults with disabilities, including a number of people who have significant impairments. This agency has also moved away from group home and clustered apartment arrangements to helping people living in their own homes with supports. The 56 people supported by the program live either by themselves or with others in apartments and houses, and receive significant but varying degrees of staff time.

The staff works in teams to assist people. Skills are taught within the context of typical daily routines and activities. A primary part of the staff's role is to help connect and involve people in their neighborhoods and community. The agency tries to recruit staff members who are themselves connected to the community, and the staff the use their own connections to increase the social networks and relationships of the people they help support. A strong sense of enthusiasm and spirit has been nurtured among the agency staff.

Residential, Inc.
(New Lexington, Ohio) Residential, Inc., is an agency which has also moved from providing group homes, and then a semi-independent and independent living program, to supporting people in their own homes. The staff at the agency began to have concerns about how people were feeling about its group homes and other residential settings; the people were telling them that something was missing. Based on this, they decided to work from the idea that everyone should have their own home--either by themselves or with others of their own choosing. Staff members recognized, however, that access to housing was a problem not only for people with disabilities, but for many other residents of the community and surrounding county. As a result, some of the agency staff joined together with other members of the community to form Perry County Housing Association, an organization designed to help promote increased opportunity for home-ownership for all residents of the county.

Along with this came a change in the administrative structure. In the past, the staff who made major decisions about a person's life had little or no direct support experience with that person. The agency recognized a problem with this, and changed to use "service planners." Each person who is supported by the agency is matched with a service planner (this match is based on people who know one another, get along, and work well together). The hours and duties of service planners are flexible, and depend on the individual's needs. Basically, the main responsibility of the service planner is to become involved with the person with a disability, draw in others, and help him or her obtain the needed assistance elsewhere.

The agency places emphasis on team support of people (trying to include at least one member of the team who does not work for the agency), building natural community supports for people, and assisting people to learn and grow through relationships, rather than special programs. From this agency's perspective, a key factor in support and integration is finding people who are willing to make long-term commitments to others.

Summary
Five factors that contribute to the success of these three residential agencies are:


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