SELECTED PUBLICATIONS BY STAFF AND ASSOCIATES

SELECTED PUBLICATIONS BY
STAFF AND ASSOCIATES
CENTER ON HUMAN POLICY

This is an abbreviated list highlighting publications by Center on Human Policy staff and associates. The books, chapters, and articles listed below have been published or are in press and should be published during 1998. These are not available through the Center on Human Policy or Human Policy Press, but may be obtained in several ways. Books and journal articles may be obtained through your local library, or through the Interlibrary Loan service of your library, if the library does not own the book or journal in question. Books, of course, may also be ordered through your local bookstore.

Updated 7/27/98

PUBLISHED BOOKS, ARTICLES, CHAPTERS AND REVIEWS

Apter, D. S. (1994). From dream to reality: A participant's view of the implementation of Part H of P.L. 99-457. Journal of Early Intervention, 18(2), 131-140.

Apter, D. S., & Songer, N. S. (1994). New collaborations: Professional-family partnerships. In G. L. Ensher & D. A. Clark (Eds.), Newborns at risk: Medical care and psychoeducational intervention (2nd. ed.) (pp. 347-364). Gaithersburg, MD: Aspen Publishers.

Biklen, D. (1987). The culture of policy: Disability images and the analogues in public policy. Policy Studies Journal, 15(3), 515-535.

Biklen, D. (1988). The myth of clinical judgment. Journal of Social Issues, 44(1), 127-140.

Biklen, D. (1989). Making difference ordinary. In S. Stainback, W. Stainback, & M. Forest (Eds.), Educating all students in the mainstream of regular education (pp. 235-248). Baltimore: Paul H. Brookes Publishing Co.

Biklen, D. (1990). Social policy, social systems, and educational practice. In L. Meyer, C. Peck & L. Brown (Eds.), Critical issues in the lives of people with disabilities (pp. 387-389). Baltimore: Paul H. Brookes Publishing Co.

Biklen, D. (1992). Schooling without labels: Parents, educators, and inclusive education. Philadelphia: Temple University Press.

Biklen, D., Corrigan, C., & Quick, D. (1989). Beyond obligation: Students' relations with each other in integrated classes. In D. K. Lipsky & A. Gartner (Eds.), Beyond separate education: Quality education for all (pp. 207-221). Baltimo re: Paul H. Brookes Publishing Co.

Bogdan, R. (1992). A "simple" farmer accused of murder: Community acceptance and the meaning of deviance. Disability, Handicap & Society, 7(4), 303-320.

Bogdan, R. (1993). In defense of Freak Show. Disability, Handicap & Society, 8(1), 91-94.

Bogdan, R., & Knoll, J. (1988). The sociology of disability. In E. L. Meyen & T. M. Skrtic (Eds.), Exceptional children and youth: An introduction (3rd ed.) (pp. 449-477). Denver: Love Publishing Company.

Bogdan, R., & Lutfiyya, Z. M. (1992). Standing on its own: Qualitative research in special education. In W. Stainback & S. Stainback (Eds.), Controversial issues confronting special education: Divergent perspectives (pp. 243-255). Bos ton: Allyn & Bacon.

Bogdan, R., & Taylor, S. J. (1987). Toward a sociology of acceptance: The other side of the study of deviance. Social Policy, 18(2), 34-39.

Bogdan, R., & Taylor, S. J. (1989). Relationships with severely disabled people: The social construction of humanness. Social Problems, 36(2), 135-148.

Bogdan, R., & Taylor, S. J. (1990). Looking at the bright side: A positive approach to qualitative research. Qualitative Sociology, 13(2), 183-192.

Bogdan, R., & Taylor, S. J. (1990). "What's in a name?". In A. Brechlin & J. Walmsley (Eds.), Making connections: Reflecting on the lives and experiences of people with learning difficulties (pp. 76-81). London: Hodder & Stoughton.

Bogdan, R., & Taylor, S. J. (1994). A positive approach to qualitative evaluation and policy research in social work. In E. Sherman & W. Reid (Eds.), Qualitative research in social work (pp. 293-302). New York: Columbia University Press .

Bogdan, R., & Taylor, S. J. (1994). The social meaning of mental retardation: Two life stories. New York: Teachers College Press.

Ferguson, D. L., Ferguson, P. M., & Bogdan, R. C. (1987). If mainstreaming is the answer, what is the question? In V. Richardson-Koehler (Ed.), Educator's handbook: A research perspective (pp. 394-419). New York: Longman.

Ferguson, P. M., Ferguson, D. L., & Taylor, S. J. (Eds.). (1992). Interpreting disability: A qualitative reader. New York: Teachers College Press.

Ford, A., Schnorr, R., Meyer, L., Davern, L., Black, J., & Dempsey, P. (Eds.). (1989). The Syracuse community-referenced curriculum guide for students with moderate and severe disabilities. Baltimore: Paul H. Brookes Publishing Co.

Hagner, D., & Murphy, S. (1989). Closing the gap on sheltered work: Case studies of organizational change. Journal of Rehabilitation, 55, 68-74.

Hagner, D., Rogan, P., & Murphy, S. (1992). Facilitating natural supports in the workplace: Strategies for support consultants. Journal of Rehabilitation, 58(1), 29-34.

Kennedy, M. J. (1990). What quality assurance means to me: Expectations of consumers. In V. Bradley & H. Bersani, Jr. (Eds.), Quality assurance for persons with developmental disabilities: It's everybody's business (pp. 35-46). Baltimo re: Paul H. Brookes Publishing Co.

Kennedy, M. J. (1994). The disability blanket. Mental Retardation, 32(1), 74-76.

Kennedy, M. (1996). Self-determination and trust: My experiences and thoughts. In D. J. Sands & M. Wehmeyer (Eds.), Self-determination across the life span: Independence and choice for people with disabilities (pp. 37-49). Baltimore, M D: Paul H. Brookes Publishing Co.

Larson, S. A., & Lakin, K. C. (1992). Direct-care staff stability in a national sample of small group homes. Mental Retardation, 30(1), 15-22.

Lehr, S., & Lehr, R. (1990). Getting what you want: Expectations of families. In V. Bradley & H. Bersani, Jr. (Eds.), Quality assurance for persons with developmental disabilities: It's everybody's business (pp. 61-76). Baltimore: Pau l H. Brookes Publishing Co.

Lutfiyya, Z. M. (1991). "A feeling of being connected": Friendships between people with and without learning difficulties. Disability, Handicap & Society, 6(3), 233-245.

Lutfiyya, Z. M. (1993). When "staff" and "clients" become friends. In A. N. Amado (Ed.), Friendships and community connections between people with and without developmental disabilities (pp. 97-108). Baltimore: Paul H. Brookes Publishin g Co.

Manion, M. L., & Bersani, H. (1987). Mental retardation as a Western sociological construct: A cross-cultural analysis. Disability, Handicap & Society, 2(3), 231-245.

Murphy, S. (1992). On being LD: Perspectives and strategies of young adults. New York: Teachers College Press.

Murphy, S., & Rogan, P. (Spring, 1992). Closing the sheltered workshop: A case study of agency change. OSERS News in Print, 29-33.

Murphy, S. T., & Rogan, P. M. (1995). Closing the shop: Conversion from sheltered to integrated work. Baltimore, MD: Paul H. Brookes Publishing Co.

O'Brien, J. (1990). Developing high quality services for people with developmental disabilities. In V. J. Bradley & H. A. Bersani (Eds.), Quality assurance for individuals with developmental disabilities: It's everybody's business (pp. 1 7-31). Baltimore: Paul H. Brookes Publishing Co.

O'Brien, J. (1991). Against pain as a tool in professional work on people with severe disabilities. Disability, Handicap & Society, 6(2), 81-90.

O'Brien, J. (1994). Down stairs that are never your own: Supporting people with developmental disabilities in their own homes. Mental Retardation, 32(1), 1-6.

O'Brien, J., & Lyle O'Brien, C. (1992). Members of each other: Perspectives on social support for people with severe disabilities. In J. Nisbet (Ed.), Natural supports in school, at work, and in the community for people with severe disabilities (pp. 17-63). Baltimore: Paul H. Brookes Publishing Co.

O'Brien, J., & Lyle O'Brien, C. (1993). Unlikely alliances: Friendships and people with developmental disabilities. In A. N. Amado (Ed.), Friendships and community connections between people with and without developmental disabilities (p p. 9-39). Baltimore: Paul H. Brookes Publishing Co.

O'Brien, J., & Lyle O'Brien, C. (1994). More than just a new address: Images of organization for supported living agencies. In V. J. Bradley, J. W. Ashbaugh, & B. C. Blaney (Eds.), Creating individual supports for people with developmental disab ilities: A mandate for change at many levels (pp. 109-140). Baltimore: Paul H. Brookes Publishing Co.

O'Brien, J., & Mount, B. (1991). Telling new stories: The search for capacity among people with severe handicaps. In L. Meyer, C. Peck, & L. Brown (Eds.), Critical issues in the lives of people with severe disabilities (pp. 89-92). Balt imore: Paul H. Brookes Publishing Co.

O'Connor, S. (1992). Supporting families: What they need versus what they get. OSERS News in Print, V(1), 7-11.

Racino, J. A., Walker, P., O'Connor, S., & Taylor, S. J. (Eds.) (1992). Housing, support, and community: Choices and strategies for adults with disabilities. Baltimore: Paul H. Brookes Publishing Co.

Rogan, P., & Murphy, S. (1991). Supported employment and vocational rehabilitation: Merger or misadventure? Journal of Rehabilitation, 57(2), 39-45.

Schnorr, R., Ford, A., Davern, L., Park-Lee, S., & Meyer, L. (1989). The Syracuse curriculum revision manual: A group process for developing a community-referenced curriculum guide. Baltimore: Paul H. Brookes Publishing Co.

Shoultz, B., & Smith, P. M. (1995). Shifting roles of parents and families. In O. C. Karan & S. Greenspan (Eds.), Community rehabilitation services for people with disabilities (pp. 169-186). Andover, MA: Andover Medical Publishers, Inc.

Shoultz, B., & Ward, N. (1996). Self-Advocates Becoming Empowered: The birth of a national organization in the U.S. In G. Dybwad & H. Bersani, Jr. (Eds.), New voices: Self-advocacy by people with disabilities (pp. 216-234). Cambridge, MA: Brookline Books.

Taylor, S. J. (1987). Observing abuse: Professional ethics and personal morality in field research. Qualitative Sociology, 10(3), 288-302.

Taylor, S. J. (1987). "They're not like you and me": Institutional attendants' perspectives on residents. Child and Youth Services: Qualitative Research and Evaluation in Group Care, 8(3/4), pp. 109-125.

Taylor, S. J. (1988). Caught in the continuum: A critical analysis of the principle of the least restrictive environment. Journal of The Association for Persons with Severe Handicaps, 13(1), 45-53.

Taylor, S. J. (1991). Leaving the field: Research, relationships, and responsibilities. In W. B. Shaffir & R. A. Stebbins (Eds.), Experiencing fieldwork: An inside view of qualitative research (pp. 238-247). Newbury Park, CA: Sage Pub lications.

Taylor, S. J. (1992). The paradox of regulations: A commentary. Mental Retardation, 30(3), 185-190.

Taylor, S. J. (1994). In support of research on quality of life, but against QOL. In D. Goode (Ed.), Quality of life for persons with disabilities: International perspectives and issues (pp. 260-265). Cambridge, MA: Brookline Books.

Taylor, S. J. (1994/1995). On rhetoric: A response to Fuchs and Fuchs. Exceptional Children, 61(3), 301-302.

Taylor, S. J. (1995). Deinstitutionalization. In A. E. Dell Orto & R. P. Martinelli (Eds.), Encyclopedia of disability and rehabilitation (pp. 247-249). New York: Macmillan Publishing Co.

Taylor, S. J. (1995). Living in the community: Beyond the continuum. In L. Nadel & D. Rosenthal (Eds.), Down syndrome: Living and learning in the community (pp. 249-255). New York: Wiley-Liss.

Taylor, S. J. (1996). Disability studies and mental retardation. Disability Studies Quarterly, 16(3), 4-6.

Taylor, S. J., Biklen, D., & Knoll, J. (Eds.). (1987). Community integration for people with severe disabilities. New York: Teachers College Press.

Taylor, S. J., & Bogdan, R. (1989). On accepting relationships between people with mental retardation and nondisabled people: Towards an understanding of acceptance. Disability, Handicap & Society, 4(1), 21-36.

Taylor, S. J., & Bogdan, R. (1993). Promises made and promises to be broken. In P. Wehman (Ed.), The ADA mandate for social change (pp. 255-268). Baltimore: Paul H. Brookes Publishing Co.

Taylor, S. J., & Bogdan, R. (1994). Qualitative research methods and community living. In M. Hayden & B. Abery (Eds.), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilit ies (pp. 43-63). Baltimore: Paul H. Brookes Publishing Co.

Taylor, S. J., & Bogdan, R. (1996). Quality of life and the individual's perspective. In R. L. Schalock (Ed.), Quality of life: Conceptualization and measurement (Vol. I) (pp. 11-22). Washington, DC: American Association on Mental Retardation.

Taylor, S. J., & Bogdan, R. (1998). Introduction to qualitative research methods: A guidebook and resource (3rd ed.) . New York: John Wiley.

Taylor, S. J., Bogdan, R., & Lutfiyya, Z. M. (Eds.). (1995). The variety of community experience: Qualitative studies of family and community life. Baltimore: Paul H. Brookes Publishing Co.

Taylor, S. J., Bogdan, R., & Racino, J. A. (Eds.). (1991). Life in the community: Case studies of organizations supporting people with disabilities. Baltimore: Paul H. Brookes Publishing Co.

Taylor, S. J., & Harris, P. J. (1996). Selected annotated bibliography: Disability studies and mental retardation. Disability Studies Quarterly, 16(3), 6-13.

Taylor, S. J., Knoll, J. A., Lehr, S., & Walker, P. M. (1989). Families for all children: Value-based services for children with disabilities and their families. In G. H. S. Singer & L. K. Irvin (Eds.), Support for caregiving families: Enabli ng positive adaptation to disability (pp. 41-53). Baltimore: Paul H. Brookes Publishing Co.

Taylor, S. J., Lakin, K. C., & Hill, B. K. (1989). Permanency planning for children and youth: Out-of-home placement decisions. Exceptional Children, 55(6), 541-549.

Taylor, S. J., & Racino, J. A. (1991). Community living: Lessons for today. In L. Meyer, C. Peck & L. Brown (Eds.), Critical issues in the lives of people with severe disabilities (pp. 235-238). Baltimore: Paul H. Brookes Publishing Co.

Taylor, S. J., & Searl, S. J. (1987). The disabled in America: History, policy, and trends. In P. Knoblock (Ed.), Understanding exceptional children and youth (pp. 5-64). Boston: Little, Brown.

Traustadottir, R. (1991). Mothers who care: Gender, disability and family life. Journal of Family Issues, 12(2), 211-228.

Traustadottir, R. (1993). The gendered context of friendships. In A. N. Amado (Ed.), Friendships and community connections between people with and without developmental disabilities (pp. 109-127). Baltimore: Paul H. Brookes Publishing Co.

Traustadottir, R., Lutfiyya, Z. M., & Shoultz, B. (1994). Community living: A multicultural perspective. In M. Hayden & B. Abery (Eds.), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities (pp. 405-426). Baltimore: Paul H. Brookes Publishing Co.

Walker, P. (1991). Where there is a way, there is not always a will: Technology, public policy, and the school integration of children who are technology assisted. Children's Health Care, 20(2), 68-74.

Walker, P. (1994). Housing and support services: Expanding options for people with severe disabilities. NARIC Quarterly, 4(1), 1, 4-6, 15-17.

Walker, P. (1994). Promoting integrated recreation and leisure opportunities for adults. In M. S. Moon (Ed.), Making school and community recreation fun for everyone: Places and ways to integrate (pp. 163-178). Baltimore: Paul H. Brook es Publishing Co.

Walker, P., & Edinger, B. (1988). The kid from Cabin 17. Camping Magazine, May 1988, 18-21.

Ward, N., & Shoultz, B. (1996). People First of Nebraska: 8 years of accomplishment. In G. Dybwad & H. Bersani, Jr. (Eds)., New voices: Self-advocacy by people with disabilities (pp. 203-215). Cambridge, MA: Brookline Books.

FORTHCOMING PUBLICATIONS

Shoultz, B. (in press). Review of Family caregiving in mental illness. Disability Studies Quarterly.

Taylor, S. J. (in press). On the possibility of reaching a common ground: The continuum and current controversies. Journal on Developmental Disabilities.

Taylor, S. J., Racino, J. A., & Walker, P. (in press). Inclusive community living. In W. Stainback & S. Stainback (Eds.), Controversial issues confronting special education (2nd ed.). Boston: Allyn & Bacon.

Walker, P. (in press). The social meaning of place: Community experiences of adults with developmental disabilities. Journal of The Association for Persons with Severe Handicaps.

Preparation of most of these publications was supported in part by one or more of the following:

Contract No. 300-85-0076
Contract No. G0085C03503
Cooperative Agreement H133B00003-90
Cooperative Agreement H133B80048
Contract No. H133D50037
Contract No. H133B30072

These contracts and agreements were supported by the U.S. Department of Education, Office of Special Education and Rehabilitative Services, National Institute on Disability and Rehabilitation Research (NIDRR).

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